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    My situation is worse, but until I have a diagnosis I don’t want to share anything on this...

    My situation is worse, but until I have a diagnosis I don’t want to share anything on this forum. I honestly wish I could see your neuro, because I’ve lost faith in mine. I just created a separate email account so if you want to talk please feel free to email me and I can fill you in on what’s...
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    Hey! Sorry I haven’t checked in on the forum for a while. I’m so happy to hear that you didn’t...

    Hey! Sorry I haven’t checked in on the forum for a while. I’m so happy to hear that you didn’t have many changes in your recent EMG. That is great news! I wish we could exchange emails so that we could talk more freely, as I am not that comfortable with visitor messages at this point, and I...
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    Nikki, thank you. You are always so kind. It is very frightening, but at this point, I just...

    Nikki, thank you. You are always so kind. It is very frightening, but at this point, I just want answers, whatever they might be. He did not tell me anything other than he found nerve damage in my foot and leg. I understood all of the terms he was using to describe what he was seeing to the...
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    Post 2: He had a medical student with him, and was explaining what he was finding. I kept...

    Post 2: He had a medical student with him, and was explaining what he was finding. I kept hearing this weird noise, which he told the medical student was a “PSW” (which I heard that noise many times), then he mentioned that “this is a CRD”, “this is increased insertional activity”, “this is...
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    Post 1: I do not wish to post on the forum as I do not feel welcome there. I will update my...

    Post 1: I do not wish to post on the forum as I do not feel welcome there. I will update my condition from now on through my visitor messages, because I know what it’s like to want to know what someone’s outcome was, who did not come back with their prognosis. So anyone who wants to follow my...
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    Update after Neuro visit

    Obviously I shouldn’t have posted an update. I apologize. Karen, I just want to clarify that during my appointment, I never once mentioned ALS or wanting/needing to have another EMG. I explained to him my symptoms, he did a physical exam in which he commented that I have atrophy, weakness...
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    Update after Neuro visit

    Just wanted to check in. I had my follow up appointment with my neuromuscular specialist at OSU on Wednesday of last week. It was a completely different experience than I had the last time. I didn’t see the medical student, only my doctor, which I think made a huge difference. He actually...
    • Andrea1653
    • Thread
    • ankle atrophy back clinical emg foot hyperreflexia medical sleep student update wanted weakness
    • Replies: 10
    • Forum: Could this be ALS?
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    Hi! I hope you are doing well. I just wanted to let you know that I ended up going back to...

    Hi! I hope you are doing well. I just wanted to let you know that I ended up going back to Dr.Stino for a follow up and it was such a better experience than the first time! I didn’t see the medical student this time, only my doctor which I think made a huge difference. He actually listened...
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    Update and advice needed

    I have a follow up appointment with the neuromuscular specialist at OSU, but the wait is of course 4 months out, on October 30th. I wanted to ask 2 quick questions before my thread closes and then I will post an update after my appointment. The first question is more about FALS. I’ve tried...
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    Update and advice needed

    Thank you very much for the responses. Yes, I have had loads of blood work. Vitamins, RA, ANA, lymes, paraneoplastic, etc. All negative or normal. I think the only blood work that hasn’t been checked is my thyroid levels. I have not seen a psychiatrist. I have been to several...
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