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    What diagnosis for SSDI or VA

    I used an ALS clinic/doctor for diagnosis. The VA accepted it and as of about one year this gives automatic 100% disability. Fine you local PVA rep and they can help guide you. Mine is great, others not so much though.
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    PEG question

    I got my mic key first. After i had it for about a year, I had a problem that they needed to change out the tube. They did not have one in stock and gave me the long type. I hated it. I have no trouble feeding my self but made a mess with the other. Talked the doctor into another one in two...
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    Any tips for excess saliva?

    There is papaya liquid (make sure it's 100%) that can easily be put in tube.
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    Any tips for excess saliva?

    I think in the peg is fine. I haven't tried this, but someone told me that aloe spray in the throat helped them clear throat.
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    For all new membbers,Just my thoughts...

    Missed it the first time. Thanks for bringing it to our attenion. This is the kind of message that explains why this forum is important.
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    Any tips for excess saliva?

    I buy them at a health food store. About $15.00 for 500, when not on sale. I take 3 with morning meds and 3 with evening meds. I don't think there are hard rules when to take or even how many. At first I only took 4, but as saliva thickened I Increased to the 6 amount. I sometimes also mix...
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    Any tips for excess saliva?

    I take six papaya tablets daily(Tropical brand). They are chewable, taste pretty good. I'v been doing this for over two years. For some unknown reason I stopped a few months ago and within three weeks I had the worst onset of heavy thick secretions ever. Five days on cought assist and...
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    Bidet

    I have one called "feel fresh." just google it for dealers. It was about $400.00. It cleans with warm water and them blows dry with warm air. The seat is also heated. I think it's great, but know there are many others that are probably just as good. You will need a electrical outlet nearby...
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    Anyone hear of post polio syndrome?

    I originally had a post polio diagnosis. After seven months of tests i got a confirmed ALS diagnosis. Both can be very tricky to confirm, I guess. Hope your mom is lucky. Best thoughts to you and your family.
  10. S

    peg tube

    I had mine done last June along with a pacer. No sore throat. One night stay in hospital. Sore for about one week but not very bad. I just finished my breakfast( jevity 1.5). I still don't use my tube all the time, but's its nice to know it's there when I need it. Good luck, but I'm sure you...
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