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  1. D

    SOD1Rx BIIB067

    I was in part A, and I'm currently in part B of this study. Is there a way for you to PM me on the forum?
  2. D

    Fecal Transplant

    So, no PALS have actually tried s series of FMTs? Anyone know of any PALs that have?
  3. D

    Fecal Transplant

    Okay... I know it's been discussed a bit before in the forums, but not at length. But the more I read about the newly found gut-brain connection, the more I believe that a series fecal matter transplants could slow or stop some types of ALS progression. I know, call me crazy. Has anyone heard...
  4. D

    When you are falling and there's not a damn thing you can do to stop it.

    Sorry to hear this Vince. It's scary... In the last couple months I've lost the ability to walk without assistance and I've taken some spills. You're right, there's nothing you can do to stop it once you start falling. Loosing independence is the scariest part. I'm afraid to go anywhere by...
  5. D

    Little itty bitty hunting trip

    That's great you got out there! I normally spend most of September in the woods... but my shoulder is too week to pull my bow back this year. Gonna try rifle season instead and hunt from a four wheeler with a disabled tag. Good luck if you go again!
  6. D

    Familial ALS research

    We have a long history of ALS in our family, dating back at least 4 generations (losses include my mother, grandfather, great grandfather, and many distant relatives). I was surprised to know that my family didn't have much documentation or research to pass along to me when I was diagnosed. My...
    • Dylan
    • Thread
    • age als als research back biogen breathing cannabis clinical clinical trial crying diet fals familial familial als family family history kids newly diagnosed oil progression research scared symptoms treatment weakness worried
    • Replies: 1
    • Forum: Familial ALS (FALS)
  7. D

    Clinical Trial Decisions

    I'm currently screening for a clinical trial that requires lots of travel back and fourth to the research facility across the country. I thought I'd share that in this particular clinical trial, the drug company covers all my air travel, ground travel, hotels, and even $50 for meals a day. I...
  8. D

    It was a Powder Day Today

    Keep it up Steve! I'm an avid snowboarder. That looks like it was a great day on the mountain! Unfortunately I think I've made my last powder turns on my own, but I look forward to some pow turns in a sit ski next winter.
  9. D

    List of Pharmacies that sell MB-12

    "Pre-filled" 30 25mg/ml syringes for $240 plus shipping from Lee Silsby. I'm injecting daily
  10. D

    List of Pharmacies that sell MB-12

    I started mine with HopeWell. But they don't ship to Oregon and found that they have preservatives in them, plus they sent me the wrong needle size. I just contacted Lee Silsby pharmacy in OH. They are sending me profiled syringes starting in a couple weeks.
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