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  1. L


    Hello, My mom wants to try this trial. It was just approved at Mayo Clinic. Does anyone have experience with this or have any information? It looks like the trials so far have been promising.
  2. L

    Is this close to the end?

    Hello everyone, My mom was actually just diagnosed a few weeks ago and she just told me she is getting "flem" stuck in her chest and she is starting to have a hard time coughing it out. Her other symptoms are left leg weakness/really not able to use it at all, trouble swallowing and slurred...
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    Stages and End of life

    Hi All, I know there arent any known "stages" but I am trying to figure out when I should move back home to be with my mom. She is probably in the beginning, moving into the middle "stage." I would like to hear about the progression of others, how long people lived, how long the last stage...
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    ALS Stages/End of Life

    Hi All, My mom was just diagnosed two weeks ago. She doesn't have great use of her left leg, slurred speech, trouble swallowing. She has fallen a few times. I know there aren't "stages" to this but I would like to hear some stories about progression, how long people have lived with this, and...