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    Question about life if a cure is ever found.

    It's been a while since I have checked in. Life for my son and myself, as caregivers, is almost unbearable. My PALS is totally paralyzed from neck down. He has a feeding tube and is on a ventilator. He seems a little more depressed lately. Still doesn't sleep well at night so my son and I...
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    Ground Hog's Day

    Every day seems more like "Ground Hogs Day". My son and I have been caring for our PALS since September 2011. The first few years were not bad. He still could talk, walk, and eat. As the disease progressed, he decided on a feeding peg tube and much later, a ventilator. He is paralyzed...
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    Possible Breakthrough-MAYO Clinic

    Thank you for posting this I couldn't share the link and I am not very computer saavy. Carolyn
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    Has anyone heard about this possible breakthrough for treatment. It was done by Mayo Clinic/St...

    Has anyone heard about this possible breakthrough for treatment. It was done by Mayo Clinic/St. Jude/UT Austin/Northwester/many more. It was a little too complicated for me to try to explain but seems promising. Here is a link. You may have to copy and paste...
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    Possible Breakthrough-MAYO Clinic

    Has anyone heard anything about this study? Amyotrophic lateral sclerosis - Overview - Mayo Clinic Mayo Clinic/St. Jude/UT Austin/Northwestern/many more Sounds promising. Way too complicated for me to even try to explain.
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    ALS Familia question

    My PALS was diagnosed in Sept 2011. I am not aware of anyone else in his family that has or had ALS. His mother passed a year and a half ago and a family member came across an old letter that she had filed away about a family member who had died showing some symptoms of ALS probably 75 years...
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    Embarassed to ask but need to know!

    My PALS was diagnosed Sept 2011. Prob had it a year earlier. Started in his hands and was slow moving until about 2 years ago and it went crazy. He is paralyzed except for his neck and a little shoulder which still allows him to drive his power chair. He has always had a really good outlook...
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    Myths about hospice care

    Deb. We live in Texas also but were told because he has a vent and a feeding tube that we do not qualify for Hospice. I am assuming that your PALS does not have a vent or feeding tube. If he does, please give me the phone number of the company you are using. We are at our wits end. He...
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    We live in Mansfield and go to UTSW in Dallas.

    We live in Mansfield and go to UTSW in Dallas.
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    Secondary Insurance

    Thank you for your replies. He is 56 and is not a veteran. I just would like to know if PALS have secondary insurance that they use that helps pay the 20 percent that Medicare does not pay. Feeding tube, vent, etc........ AARP, United Healthcare, BCBS.