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    Dr. Bedlack and Lunasin.

    Hi everyone, I have a question. Dr. Bedlack was here last Saturday. Part of his presentation was on Lunasin. I would like to start the regimine, However, the only way to buy, the products is through a distributor. I sent Dr. Bedlack an email asking if he knew of another way to purchase...
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    Injection site

    Hi everyone, I finally got my B12 Methylcobamine. I had to get it at a pharmacy locally because Hopewell Pharmacy in New Jersey is not contracted in Oregon. $366 for a 32 day supply and does not include pre-filled syringes. I can measure it out though. They did come with some preservatives and...
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    Tudca

    Hi everyone, I'm wondering if someone could recommend the most trust worthy place to purchase tudca and what dose to take? My neurologist was not sure. I found a link about the small pilot study it mentioned 1 gram twice a day. Is that by injection or oral? Thank you very much. I found out...
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    My journey, more questions. :)

    Hi everyone and Happy Memorial Day. As time goes on, it seems more questions come up. My neurologist retired so I'm in between providers. So, far, what has changed the most is my right hand/arm. It's getting harder to turn the ignition key, can't hold the coffee pot really anything that...
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    Methylcobalamin daily B12 injections

    Hi everyone, I did a search on here but could not find any threads on the Methylcobalamin B12 daily injections. ALS worldwide recommends and supports the use of this. I'm having a hard time getting any of my providers to write me an rx. I've told them I will pay out of pocket. I at least...
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    ALS and living alone-concerned

    Hi everyone, I had the contractor come out to give me a bid on remodeling my bathroom to make it wheelchair accessible. Not surprisingly, it is very costly. I live alone and am processing all my options. I've lived in my house for 21 years and would really like to stay here. Right now, I'm...
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    In your humble opinion

    The ALS organization came out to my house and determine d my bathroom wasn't conducive for a wheelchair and gave me the name and number of a contractor. I know everyone's disease progresses differently and maybe I'm still in some kind of denial. I KNOW I'm still in shock. There hasn't been...
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    Neudexta

    Hi everyone, I just posted my story on "newly diagnosed ". I am wondering if anyone has tried Neudexta and If so, what has your experience been? I currently am taking Rilutek and Zoloft. My neurologist prescribed the Neudexta (for speech and swallowing issues), but with hesitation due to...
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    Newly diagnosed and devasted

    Hi everyone, I am newly diagnosed (12-29-15) with ALS. Since my dx, I've been devastated. My mom passed away in August and I was in a pretty deep depression over that when I got my dx a couple month later. I feel like I was hit over the head with a sledgehammer, and that wasn't enough so I...
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