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  1. T

    Too young

    Our sister in law passed on yesterday. I am so angry. Angry at the ALS. Angry at her suffering. Angry that it was only a year ago she was healthy. Angry....angry...angry.... Angry that even AIDS seems to be treatable these days & many cancers. But this THING, this BEAST .... it is...
    • teawoman
    • Thread
    • age als angry children cure fear free hope love pain sad young
    • Replies: 11
    • Forum: In memory of
  2. T

    Ceftriaxone Trial

    I read with interest about this trial bc my DiL was not accepted since she could not meet the criteria for breathing. She has gone downhill quickly. She is v disappointed as are we all that she will not be participating. I think she is looking at other options, but she is on the fast track...
  3. T

    Worried today

    My DiL also has accelerated very quickly from being totally able last Spring to losing so much of her lung capacity/speaking & is now in WC etc. Sadly, she will not be able to eat much longer either since her swallowing is becoming compromised.... I too am worried about her H who is a fabulous...
  4. T

    Things ALS can't take

    It can't take away hope, peace, love, or just pleasure in your own thoughts or joys in your life. It can't have them. No way....
  5. T

    How people respond

    Here is what I have heard: (I do not have ALS, but newly diagnosed DiL) "They have treatment for that, don't they?" & "Don't people live a long time with that?" "My mom had Alzheimer's too" (This person did not hear well & I guess "ALS" sounds like AZ when you slur it together with other...
  6. T

    Should I be praying for her to die?

    You can always pray that God's will be done & that He gives you the strength to accept that Will. You can always pray the God please release her from her pain. That can mean death or not, but it can also mean that she lives comfortably while she is here on Earth. You can always pray for...
  7. T

    6 mos ago

    Thanks for the words of encouragement. I feel bad for my DIL; I feel that, with any other illness you could name, she would at least have a fighting chance. At the very least. Maybe some very advanced cancer, that is not so, but I cannot think of one illness that is as devastating as ALS...
  8. T

    Grief and other people

    Category 3 people can become Category 1. Probably they can go in the other direction too, but at least they tried for awhile. Sometimes caregivers go through all 3 in the same day too! I know, have BTDT. But they who remain stuck in Cat 3....yes, prob best you forget them...
  9. T

    6 mos ago

    Hi Everyone: I am not caregiving presently, but will probably be involved with the team of carers who are helping out my DIL. 6 mos ago, she could dig in her garden. Hug her kids. Make love with her husband. Talk and smile and laugh and go to work. Drive. Swallow a twinkie...
    • teawoman
    • Thread
    • als anger breathing caregiver caregiving dementia eating food friend ideas kids life love mad swallow symptoms taste voice wheelchair work
    • Replies: 15
    • Forum: Current caregivers
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