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  • Users: evo34
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  1. E

    27 Male, EMG "normal", MRI "normal", similar to Gusflower's

    +1. Stand up for yourself. Unreal how certain chronic posters here -- and there is no better word for them -- have made it their primary mission to try to discredit/argue every detail of someone else's life....a life they know absolutely nothing about. Misplaced anger is all I can think of...
  2. E

    Question about ALS

    "Go away now"? When someone's mother is on the verge of being diagnosed? What is your problem?
  3. E

    The Weakness Issue - Final Verdict?

    Wright -- How many cases of ALS have you personally diagnosed?
  4. E

    The Weakness Issue - Final Verdict?

    You are dead right. You only become clinically weak if you have a very small muscle affected first, or your larger muscles have been dying for a long time. So yes, many people have "perceived" (yet very real) weakness before they are diagnosed and before they fail any clinical test.
  5. E

    Continued: I do not know how this is going to turn out for me, but just be aware that people...

    Continued: I do not know how this is going to turn out for me, but just be aware that people who assert that ALS only presents as focal weakness have not done the research. 10% present with generalized weakness and 25% present with bulbar symptoms. So only 65% have an initial acute problem...
    • evo34
    • Profile post
  6. E

    I'm in a similar boat as you two it sounds like. I'm 41 and have had generalized weakness...

    I'm in a similar boat as you two it sounds like. I'm 41 and have had generalized weakness progressing very slowly for last 18 months. Speech slurring and saliva issues getting noticeably worse now. Same burnt tongue feeling since onset. Coordination issues with walking, typing, using mouse...
    • evo34
    • Profile post
  7. E

    BFS or ALS? A must read if you twitch!

    Unfortunately, ALL of this is horribly, dead wrong. Please check your facts with experts before posting.
  8. E

    waiting to see a neurologist

    You're ignoring the point. Why do you insist on claiming that twitching is a late-stage symptom in ALS, when nothing exists to support the assertion? I'll call out claims that are false every time I see them.
  9. E

    waiting to see a neurologist

    Twitching is not a late symptom. Where did this myth come from? It gets repeated over and over again in this forum. In the vast majority of eventual ALS patients, twitching is one of the earliest symptoms. Ask any ALS specialist, or better yet, read ALSA's "Initial Symptoms of the Disease"...
  10. E

    Just a few questions

    Someone should save this thread as a classic example of what happens in this sub-forum when someone undiagnosed dares to pose a few questions. The troops gather and sling arrows at the poster. They tell the poster to go away. They start asking the poster aggressive questions of their own...
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