You should all be proud of how you cared for her - how lucky she was to be surrounding by you all. I am sharing in your grief and praying for you and your children.
Thanks to all for your kind words and prayers. Johnny left us yesterday - it was peaceful. He was a man of great faith who was surrounded by his family. This disease had taken everything from him - and he just couldn't do it anymore.
I have made very few comments on this forum over the past 18 months. However I have spent many hours reading your stories. My brother Johnny is now in palliative care and is in his last days with us. He put up a hell of a fight - but now we must let him go. It is hard not to feel lost and...
Hi pepper, my name is Madonna and my brother has mnd. The last couple of weeks he has also been sleeping most days - I just read your post where you discussed your husbands sleeping. I would be very interested to see what you discovered regarding this and if his sleep pattern has improved...