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  1. C

    One more bulbar ?

    Hi, There are many causes for hoarseness. Don't assume als. As other members have mentioned, reflux can cause it and many other conditions. You don't mention other symptoms of als so discuss your symptoms with your doctor to determine what you should do next
  2. C

    Finally got a diagnosis

    I am sorry to hear of your diagnosis but am glad to hear you have a team of professionals to offer their support. My father had bulbar als and he was relieved to hear the diagnosis even though he understood the seriousness of the diagnosis. He had the most wonderful healthcare providers and it...
  3. C

    Thanks Kate! I will let you know the result of the EMG. I hope you and your Mom are doing...

    Thanks Kate! I will let you know the result of the EMG. I hope you and your Mom are doing well. I keep thinking of both of you and hope all is well.
  4. C

    Hi Kate, You left me a message and asked if I would update you about my medical condition. I...

    Hi Kate, You left me a message and asked if I would update you about my medical condition. I met with a neurologist and he said he doesn't believe I have als. I did provide him with the my father's reports from Cleveland Clinic and the University of Michigan so he decided to conduct an EMG...
  5. C

    my mom has had bulber als for two years

    Dear Kate, I thank you very much for reaching out to me. The Speech Pathologist examined me and she is very concerned about me having als as she noticed weakness in the left side of my mouth. I am seeing the neurologist later today. So I am nervous. I will let you know what is happening...
  6. C

    my mom has had bulber als for two years

    May I discuss the subtle symptoms of bulbar als with you. My father passed in 2008 with bulbar als and my symptoms are similar. I have a medical background but even though I helped my father with his diagnosis and have done thorough research, my symptoms are not clear cut. I have not gone back...
  7. C

    Als or Scleroderma

    My father died from bulbar als. He saw many physicians and I finally took him to Cleveland Clinic to confirm his diagnosis and I also took him to the University of Michigan which confirmed it. I am hoping I don't have familial als. I have difficulty at with speech at times, bite my tongue and...
    • Cherylthenurse
    • Thread
    • als bulbar bulbar als clinic diagnose diagnosis familial familial als father neurologist scleroderma speech swallowing symptoms tongue
    • Replies: 0
    • Forum: Progressive bulbar palsy
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