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  1. ChesterB

    ELASTIC WAISTBAND CLOTHING

    I might be able to use the side zipper pants with a zipper tool. I have just about lost all strength and dexterity in my arms, hands, and fingers.
  2. ChesterB

    ELASTIC WAISTBAND CLOTHING

    I cannot pull any clothing with an elastic waistband on or off my hips without a struggle. I can't get my arms above my waist when I try, and my hands get trapped inside the elastic. Does anyone know of any alternatives?
  3. ChesterB

    Anyone still walking (with/without assistive device) 4+ years after limb (legs) onset?

    At 70 yrs. and 6 yrs. since diagnosis I am still walking, but in the last 10 months I have have suffered several bad falls that required trips to the ER. I always fall forward and two weeks ago I fell on my face and broke a front tooth out. I have a rollator but I can't operate the brakes. I'm...
  4. ChesterB

    Problems with bowel movements

    Thanks everyone for the great advice. Marty
  5. ChesterB

    Problems with bowel movements

    I've been experiencing difficult BM's for about a month and I'm seeking advice from my fellow PALS. It seems that my BM's lately have become difficult or impossible despite constant use of MiraLax, other fiber laxatives, and even prune juice. My ALS doctor said that it's constipation, but I...
  6. ChesterB

    Anyone still walking (with/without assistive device) 4+ years after limb (legs) onset?

    I have limb onset since my symptoms began in 2018, and it has affected my arms hands and fingers, and now it's getting into my shoulders and back, as well as my diaphram. I have trouble walking upright and keeping my head up. All this and I still walk some and I am still driving daily. I have a...
  7. ChesterB

    Rib Cage Pain

    Yes, I had a full work-up in January. Everything was within limits
  8. ChesterB

    Rib Cage Pain

    I am in the early stages of breathing problems and I'm having a lot of shortness of breath. On top of that I've had several bad falls in recent months. I am now experiencing quite a lot of rib cage pain near the base of my breast bone that goes around both sides all the way to my spine. Is this...
  9. ChesterB

    Fasiculations and Progression

    I'm now in my 5th year since the onset of symptoms, and 4 years since official diagnosis. My main symptom has been muscle fasiculations in my limbs. At this time my muscles atrophy has progressed quite a lot, I've lost about 40 lbs. in the last year, and just in the last few days I've noticed...
  10. ChesterB

    Onset of respiratory symptoms

    I’m getting a Trilogy next week. Looking forward to better sleep and less anxiety.
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