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  1. jemahiser

    To vent, or not to vent- that is the question.

    I participated in a clinical study through The University of Michigan about a year and 1/2 ago. A large percent of the participants were ALS diagnosed. A few were spineal cord injuries I think. It was for people currently on Bi-Paps. For several weeks I was left on the Bi-Pap and monitored...
  2. jemahiser

    making friends

    I understand completely for patient or care giver alike. In either capacity it is difficult to get away from. I am diagnosed 6 yrs. And my wife worries when she is away on a respite. This disease sucks so bad it is relentless. I want some person to find a cure for this disease so I can trade...
  3. jemahiser

    To vent, or not to vent- that is the question.

    Never will but I make my own decisions along with my wife. I am 56 and enough is enough when my lungs are done. I just don't want some one telling me what quality of life means. Every person on this site would have a differant
  4. jemahiser

    sorry marie, i must totally not understand how to use this site. I will educate myself and see...

    sorry marie, i must totally not understand how to use this site. I will educate myself and see if i can do better.
  5. jemahiser

    Where is everyone?

    I have even found this forum to abandon their friends. They eliminate answers from other members that might be of interest but the monitor doesn't agree with. I am 6 yrs. Dx my true friends have stuck with me. I expected to add many cyber friends when i found this forum a couple week's back...
  6. jemahiser

    New here/Scared here

    Twin, I was mis-diagnosed for 2 yrs. Finally on my second EMG they figured it out. Keep gaining all the knowledge you can and chin up. Some days it's easier then others. Take control of your own care. Make them explain every thing and ask questions. Good luck on your journey God bless.
  7. jemahiser

    Noninvasive ventilator vs. Invasive ventilator

    Last time I was checked february 2010 I was @ 51% I have switched to hospice care since so I haven't a current number. If you google this exact phrase the first 2 entries will take you to the explanation of the clinical trial I was part of. "respiratory clinical study ALS patients university...
  8. jemahiser

    Noninvasive ventilator vs. Invasive ventilator

    Pulmonetic systems LTV950 this is the make and model of machine I have used since clinical trial. It has worked great. Questions, give me a holler!
  9. jemahiser

    Noninvasive ventilator vs. Invasive ventilator

    respiratory clinical study ALS patients university of Michigan google this exact phrase and at least the top two will get you the info. I couldn't get it to link. Let me know of any questions.
  10. jemahiser

    Noninvasive ventilator vs. Invasive ventilator

    ditto Linda
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