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    Excessive saliva

    Danny, my husband has had ALS since 2007 and the real onset happened in 2009 and escalated in 2011. He is one of the fortunate ALS recipients that is succeeding in having it longer than most. Once you are first diagnosed normally within 1-2 yrs (according to progression) you pass away. My...
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    ALS Walk article about me

    Al, my husband Ed will be featured on May 26th in the National ALS newsletter. He is also defying the odds. He was originally diagnosed in 2007 and we have not stopped since. We keep going. It is now 5 years and I am hoping that the Lord will give us many more to travel. Here is a salute to...
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    Bi pap

    My husband uses the nasal mask. He likes that one better. It is easier and nothing on top of the nose.
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    Hospital bed

    If you are looking at a memory foam be careful because the person cannot turn in it. You remain stationary. Memory foam does not allow the patient to turn. We went with an adjustable bed. My husband will be bedridden in the near future and we wanted something for his comfort so he can watch...
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    Side vs rear loading minivan- experiences?

    We have a side entrance minivan- town and country. Spacious and good on the road. I like it also because I feel that when you are in a parking lot and the person in the wheelchair is entering they are not out in traffic. Good for co-piloting and conversation They are right there with you...
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    Urging Congress to support ALS Registry

    Urge Congress to Support the National ALS Registry We need your help TODAY to continue funding for the National ALS Registry. U.S. Representatives Eliot Engel (D-NY) and Peter King (R-NY) are circulating a letter requesting the House Appropriations Committee provide $10 million in funding for...
    • apollick
    • Thread
    • advocacy als als registry alsa cure family free hope lou gehrig's disease questions support treatment website
    • Replies: 3
    • Forum: Off topic everything
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    Asperation Pnuemonia and ALS

    Joni, I am glad that your husband does not have pneumonia. It is always a trial on us as much as it is on him. To Marilyn- I learned to put myself in my husband's shoes and looking at him asking myself how does he feel. There is so much that is going on inside of him- worrying about me...
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    Multiple Sclerosis Drug to be tested for ALS

    February 15, 2012 - Received this last evening ALS TDI to Test Multiple Sclerosis Drug in ALS The MDA-supported ALS Therapy Development Institute (ALS-TDI) plans to launch a phase 2 clinical trial of TDI 132, a compound that modulates the immune system Article Highlights: • The nonprofit...
    • apollick
    • Thread
    • als als research clinical clinical trial food immune research test therapy treatment trial
    • Replies: 3
    • Forum: Research and trials
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    Please sign our petition if you haven't already!

    Posted on my facebook page!
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    Asperation Pnuemonia and ALS

    Re: Scared Praying for you and knowing that the Lord is along side you both at all times. He embraces you with His love just feel it.
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