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    Neck pain?

    My neck has been killing me again! I'm about to take several days away from the computer to see if that helps but this has been an issue I've dealt with since I started having the other symptoms and I don't know if it's autonomic dysfunction and/or PLS/ HSP. Does anyone else have killer neck...
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    Good Paper on PLS anyone want a copy

    I would love a copy! Thanks! [email protected]
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    I started a blog

    Does anyone else do this? This support forum and my blog were recommended by my therapist. I'll let you know if it helps or better yet, if it is the :smile:;):grin:8) whine and cheese: riesling and pepperjack please... and some crackers... or maybe merlot?
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    How are you? If you get a sec, send me a PM, please. Thinking of you!

    How are you? If you get a sec, send me a PM, please. Thinking of you!
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    Does any of this sound familiar?

    Personally, I'm tired of time telling. :) I'm saying that with a smile.. Thank you for your response!
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    Does any of this sound familiar?

    Lately I have noticed my chin and lip twitching (my eye did for four days). Yesterday I thought I was swallowing but I choked instead.. thankfully it was only wine but it happened twice. I think I freaked my husband out but it certainly disturbed me.. I was really hoping I wouldn't have to face...
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    PLS Therapy

    Third doctor said I have upper motor neuron "pathology".. and either pls or spastic paraperesia... or whatever... for the latter there are more cognitive signs from what I'm reading and my cognitive decline is very obvious. My eight year old daughter thinks that "where is my phone" is part of...
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    How bad does it need to be before you would consider ending it?

    They can send me hate mail also... I believe we have a right to die when we are at "that" place, particularly physically. Everyone's place is different. One person might feel they can't live with Alzheimer's or Dementia... another person might feel they cannot go on with constant, horrible...
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    How bad does it need to be before you would consider ending it?

    Having had to face the question of this possible diagnosis (right now it's PLS) several times I understand on a level as well. I thought about this A LOT and my decision was that as long as I felt I had a purpose here on this earth I would be here and that if it were to the point where I felt I...
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    PLS Therapy

    Wow... you guys are incredible. Kim, you are so sweet but I imagine you have already had your share of EMGs ;) plus your legs are probably hairier or I might give it a chance. Beky and all who are talking about decline, if you want to know about executive function decline and keep an eye on it...
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