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  1. Monkeymind

    Recently I started to took some pain meds but it’s not very often, because my pain is mild. I...

    Recently I started to took some pain meds but it’s not very often, because my pain is mild. I got almost everyday tingling in fingers and it’s triggered by movement (washing face ) I know it’s hard but do not do unnecessary blood tests, it’s not gonna help you or feel better. If CK is lower you...
  2. Monkeymind

    Anyway I feel worse and docs treate me only with vitamins no “hard” drugs , it’s not logical.

    Anyway I feel worse and docs treate me only with vitamins no “hard” drugs , it’s not logical.
  3. Monkeymind

    As I know normal limits of CK is up to 200. Once I got 169 and later 337, but it also depend of...

    As I know normal limits of CK is up to 200. Once I got 169 and later 337, but it also depend of muscle mass. Its hard times mate, I really have hope that it’s not a condition like MND/ ALS but the neurological issues are bad in general and we are to young. I see my relatives how enjoy there’s...
  4. Monkeymind

    Hey there! I saw your new post, how are you? I do not know if it’s appropriate but as advice...

    Hey there! I saw your new post, how are you? I do not know if it’s appropriate but as advice, speak with your docs about EBV virus. It could cause symptoms as yours.
  5. Monkeymind

    That it’s bad in this conditions, everything can change in last moment and that scares me. I...

    That it’s bad in this conditions, everything can change in last moment and that scares me. I also got some pain and basically that should point away from ALS or MND but again its not guaranteed. Only time will show, I hope that we will be fine and it’s not related to our fears.
  6. Monkeymind

    Sorry to hear it! Even if you do EMG nothing is for sure. If you do EMG and it’s fine , later...

    Sorry to hear it! Even if you do EMG nothing is for sure. If you do EMG and it’s fine , later could chang, or even its abnormal doesn’t mean it’s ALS. I have two EMGs for period of 3 months they were the same both times. Does not point to ALS but are abnormal, eventually after 6 months I will...
  7. Monkeymind

    Hello. Nothing better, only getting slowly worse. I am sure it’s MND but time will be my judge...

    Hello. Nothing better, only getting slowly worse. I am sure it’s MND but time will be my judge. How are you?
  8. Monkeymind

    Is it ALS ?

    I took some time to understand what it mean, so if EBNA is positive it mean infection in the past, but is it the reason for neurological problems it’s unclear. For that purpose I need to do some EBN DNA and B-cells and T-cells blood or liquor samples. Thats it about EBV. I would like to ask...
  9. Monkeymind

    Is it ALS ?

    So, quick update again, I went to a guy go practice some bioscanning with six hands, alternative medicine. Found my stomach and anxiety disorders. Didnt find anything strange in spinal cord and head ( which is confirmed by MRI). He is like touching you and says what’s wrong. Didn’t find my...
  10. Monkeymind

    Is it ALS ?

    So, about EMG. I will do summary. 1. Prolonged F waves for ulnaris, medianus in right hand and in right leg( didn’t remember the name of the nerve), and ulnaris for left hand. 2. Poor/ bad conductions for ulnaris and medianus in right hand and poor conduction in ulnaris on left hand. 3. Normal...
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