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  1. M

    Concerned Spouse Update

    notme: one other thing I forgot to add about the shunt test, and why the cardiologist does not believe this is the issue, is that her oxygen levels have remained pretty normal. Apparently, oxygen levels are normally decreased with shunts.
  2. M

    Concerned Spouse Update

    kmendsley: some type of autoimmune issue may be at play here, especially in light of the fact that my wife's mother has Lupus and my wife has been diagnosed with an undifferentiated connective tissue disease. The problem, to date, is that my wife has never tested consistently for any specific...
  3. M

    Concerned Spouse Update

    We have been at Mayo for the last 2 1/2 weeks trying to reach a diagnosis for my wife. The good news is that the extensive EMG performed by a seasoned neurologist who is apparently one of the leaders in his field with respect to the administration and interpretation of EMG tests came out...
  4. M

    Concerned Spouse Update

    js58, given that you and my wife are both experiencing respiratory muscle weakness, would you be willing to compare notes through private email or over the phone? This might greatly assist in leading to a diagnosis in both our cases. Please let me know and I will provide you with my email...
  5. M

    Concerned Spouse Update

    Once again, thank you for your comments. They have both educated and consoled me. My wife and I head to Mayo on May 9 for some fresh eyes on her medical condition, and would appreciate your thoughts and prayers.
  6. M

    Concerned Spouse Update

    Once again, thank you for the informed responses. Trfogey, how should I process the muscle biopsy result? What do you take from it?
  7. M

    Concerned Spouse Update

    Thank you so much to all who have responded. Your comments have been very helpful. My wife performed a type of pulmonary stress test this morning where they measure your oxygen saturation level, heart rate, and blood pressure. While riding the stationary bike, her saturation over the ten...
  8. M

    Concerned Spouse Update

    You may recall that I posted about a month ago under the topic, "Concerned Spouse," and the general feedback I received at that point was that my wife's presentation did not point to ALS. To briefly recap, my 37-year-old wife started experiencing breathing difficulty around Thanksgiving. She...
    • mnhome
    • Thread
    • als atrophy biopsy breathing concerned denervation emg fatigue heart information muscle muscle biopsy muscle fatigue muscle weakness myasthenia gravis neurologist neurology testing tests update weakness work
    • Replies: 21
    • Forum: Could this be ALS?
  9. M

    Concerned Spouse

    Thank you all for the helpful feedback. Would it be unusual for ALS to initially present within the respiratory muscles?
  10. M

    Concerned Spouse

    Wife is 37 years old. Approximately 10 months ago, she developed periodic, deep, dry cough combined with difficulty breathing and general fatigue. Over the last year, has had three separate episodes of scarlet fever type rash and sore throat. Strep cultures came back negative. At or about...
    • mnhome
    • Thread
    • als atrophy back breathing concerned diagnosed emg fasciculations fatigue muscle muscle weakness muscles neurologist symptoms test tremor weakness
    • Replies: 5
    • Forum: Could this be ALS?
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