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  1. D

    Arm Fatigue

    Thanks for the reply....seems like we're in the same boat. I also have no trouble when swimming or a lot of other things (holding my 2 year old for example), but it seems like the stretching I was doing really took something out of me. I'm also glad to hear that it's not necessarily "everything"...
  2. D

    Arm Fatigue

    Hi all...... Since my original PLS diagnosis about a month ago I've been trying to do daily stretching to keep my flexibility from getting worse (and possibly get better too). I had not really done much with my arms as this is affecting my legs more than anything. Last weekend I did a lot of...
  3. D

    PLS Becoming ALS

    Just to make sure where on the same page, I have been diagnosed with PLS and the doctor said it would become ALS....not the other way around.
  4. D

    PLS Becoming ALS

    I'm not sure what is more upsetting at the moment........having somebody confidently proclaim I might have as many as 15 years to live when he clearly is not 100% sure of this (again, he was going under assumption that the "vast majority of PLS cases turn into ALS" and basing the 15 years on...
  5. D

    PLS Becoming ALS

    I had my first meeting with my neurologist today since the PLS diagnosis. One thing that he said that I found particularly interesting (alarming) was that "the majority of PLS cases become ALS". This is the first I had heard of that and I haven't read anything anywhere that confirms this. So he...
    • dank
    • Thread
    • als confused diagnosis life neurologist pls pls diagnosis progression slow progression
    • Replies: 32
    • Forum: Primary lateral sclerosis
  6. D

    Family Support

    My diagnosis was only 8 days ago, so this is still pretty fresh, but....... My wonderful wife has been staying super positive to keep up my spirits (and so far it's been working) and we're both preoccupied with out 2 girls for much of the time anyway. But this morning she clearly was down about...
    • dank
    • Thread
    • advice confused confusing diagnosis family helpful life pls scared support
    • Replies: 6
    • Forum: Primary lateral sclerosis
  7. D

    Is pain to be expected?

    First of all, in my short time on here I have found it to be very helpful. It's nice finding people who are dealing with similar issues (though I wish none of us were) that are still staying positive and being able to enjoy their lives. My latest question is this..... I understand there is a...
  8. D

    Told today it appears I have PLS

    Thanks for the feedback. I can already tell I'm in good company, which is encouraging! My 1st follow up to "monitor" is July 27th, so I want to go with lots of questions now that I have had a bit of time to digest things. Are there diets, exercises, etc that are recommended? Does anyone have...
  9. D

    Told today it appears I have PLS

    I received a phone call from my doctor today telling me they have ruled out all other possibilities for the weakness in my right leg and he states I have a degenerative muscle disorder that he believes his PLS. The weakness in my leg began about 3 years ago and has gradually gotten worse...
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