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    Anybody Familiar With Spinal Muscular Atrophy?

    Hi, I did have a biopsy but not any of the problems you had. I did walk out minutes later and didn't have any problem at all. I'm sorry to here you did. My EMG looks like SMA but I can't have it because the genetic testing was negative. My biopsy did show denervation confirming LMN issues...
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    Military / Military dependents and ALS

    Thank you Jeff for for your information but more for your service (your wife as well). I am also sorry yours also included ALS.
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    Anybody Familiar With Spinal Muscular Atrophy?

    I was diagnosed with SMA before I showed UMN symptoms so I learned a lot then. The best information comes from the FSMA. Call them I did with the one in Tampa florida and they had only person with later onset but it was so helpful. I also went to the international conference this past summer...
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    Military / Military dependents and ALS

    Hi Everyone, I have read a lot of information about those in the military and ALS. There is a high rate of veterans who get ALS. The VA has even recognized this but I was wondering if anyone knows if anyone knows if there is a higher level of dependents of veterans who have ALS? I was a...
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    PMA and ALS "the change"

    Thank you!
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    Progression

    Yes, a road map would be nice. It is good to know how others are similar and different. Thank you!
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    Progression

    Thank you very much Lisa. Sorry to hear about your mom. It is good to know how others progress even if I know it can be different. Have a blessed day!
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    PMA and ALS "the change"

    I have had proximal leg weakness for the past 9+ years very slow progressing. After 7-8 years I finally asked the doctor and showed lower motor neuron signs like Absent / demenished deep tendon reflex, with no Upper motor signs, and my EMG showed denervation as well as my muscle biopsy showed...
    • bryant123martha
    • Thread
    • als back biopsy bulbar clinic conference denervation diagnosed emg genetic genetic testing help! hyperreflexia muscle muscle biopsy pma progression reflex sma testing umn weakness
    • Replies: 2
    • Forum: Progressive muscular atrophy
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    Progression

    I have had proximal leg weakness for the past 9+ years. After 8 years I asked the doctor and showed lower motor neuron signs like Absent / demenished deep tendon reflex, with no Upper motor signs, and my EMG showed denervation as well as my muscle biopsy showed denervation. He diagnosed me with...
    • bryant123martha
    • Thread
    • als back biopsy bulbar clinic conference denervation diagnosed emg genetic genetic testing help! hyperreflexia muscle muscle biopsy pma progression reflex sma testing weakness
    • Replies: 7
    • Forum: Could this be ALS?
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    Does anyone know anything about spinal muscular atrophy type 4?

    I was diagnosed with SMA and when the testing came back it was negative. I attended the international conference for SMA and it was very informative. I was able to speak to the SMA researchers and they were very helpful. Apparently as long as the SMA genetic testing you have done has the...
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