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  1. M

    als questions

    MY MOM WA SDNG WITH ALS IN AUG2010 AND SHE NOW HAS A TRACH GOT IT IN NOV2010 SHE STILL BREATHING ON HER OWN THE VENT IS HELPING HER VERY LIL SHE NOW CAN MOVE HER FEET VERY LIL BEFORE THE TRACH SHE COULD NOT. ALL THE TTWITCHING AS STOPED. if we deflate the bubble she can still talk. we sit her up...
  2. M

    Going Home/Staying in Hospital on a Vent + What is day to day life like on home vent?

    my mom was put on a vent 11/2010 and we brought her home a week later it is not bad at al it can get stressfull because they do not sleep very well. We have a home health we got 84 hours a week. but before that we did all my dad retired and i quit my job to care for her thank god my mom had a...
  3. M

    communication

    she cant move her feet very lil and she dont have teeth we have home health but we dont hvae them every night
  4. M

    communication

    My mom as the trache all ready and we are looking for somethiing that she can use to wake us up at night she can longer lift her hands....
  5. M

    does twitching stop once u are on the vent

    Thank u for responding.. I've asked this question on many sites and know one answer me. She has a lot of symptoms of ALS but they just don't add up..plus they gave her IVIG but no therapy and the doc said well it didn't work so its ALS but they didn't do a biopsy on her..I need to find a real...
  6. M

    does twitching stop once u are on the vent

    My mom has ALS she got on the vent nov5 and all her twitching as stopped she still eats on her own she does not have a peg.. And she moving her feet very little when before she could not move them at all. Please some one give me some information IVE been doing my own reacher and looks like my...
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