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  1. T

    UGH! Do I count?

    Thank you all so much for your kind words, and sweet thoughts. Adjusting to life has been....interesting. I am so grateful to all you for the support, and try every day to remember that she has truly been set free.
  2. T

    UGH! Do I count?

    Just wanted to thank you all for you caring and support. Unfortunately. my grandmother passed away early yesterday morning. An unexpected turn, but at least she is no longer suffering. As the hospice nurse put it, she's been set free.
  3. T

    UGH! Do I count?

    Thank you all so much for the kind words of advice. I agree wholeheartedly with the fact that I will never regret what I'm doing. The doctors all told me she would have to be put into a care facility and I told them there was no way. I will never let her be alone, just like she never let me...
  4. T

    Being Pushed Away

    Hand, Thank you for posting your story! I went through this with my Grandmother while she was being diagnosed with ALS and also with my mom while she was going through her cancer diagnosis. I think that these looming issues force people to face their ultimate vulnerabilities, and who wants to...
  5. T

    UGH! Do I count?

    Hi All, Thank you so much for responding! To be clear, my grandmother still speaks, but has a very thick slur. She is currently refusing to use any of the communication boards that we have, or any notecards. She is unable to write. Basically, usually, I can understand her quite well...
  6. T

    UGH! Do I count?

    So...I'm sorry that my first post has to be negative, but, here it goes! I am the only caretaker for my 70 y/o grandmother (who raised me) who has ALS. She was recently was admitted into in-home hospice, which, I think, is a mixed blessing. In one regard, we are getting more help. In...
    • TakingCareofGram
    • Thread
    • als breathing christmas crying family frustrated hospice ignore life peg rant scared sleep stress support switch wrong young
    • Replies: 27
    • Forum: Rants and raves
  7. T

    So very, very tired . . .

    I echo the sentiments here as well. I'm exhausted constantly. The holidays seem to magnify that (especially when a tree falls on your head!). I feel like I can barely get through the day to day things, and when you add holiday set up/clean up, cooking, visitors, etc....WOW. Hang in there...
  8. T

    Cleaning a Suction Machine

    After hot water, we suck some Scope mouth was through the tube, and it kills the germs, and keeps it smelling nice!
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