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    Thoughts on how my PALS Is feeling?

    The wash cloth I am guessing absorbs saliva and phlegm and therefore is not struggling with swallowing it. The other thing is it helps with drooling. Our loved ones need small adjustments with pillows and slight changes in the position of arms and legs. They need massages and gentle exercises...
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    Advice on caregivers schedule for PALS living alone

    We hired a live in caregiver experienced with ALS. My brother wants to remain in his home. He is 62 with an aggressive decline in his disease. She cooks, cleans, prepares meals, laundry, in addition to all his personal needs including exercising him, massages, etc. she arrives Mondays at 8...
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    Long few days. Just needed to let it out.

    I can only imagine the stress and strain and utter exhaustion felt by you and Joe. <religious content removed; please use Religion section when appropriate>
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    Crystal’s thread

    You are not alone. My PALS is my 62 yo brother. Diagnosed in June. Dealing with MS as well. Retired my job and temporarily relocated to be his caregiver in the home. He is losing abilities daily. We seem to be so late in getting him the support and help he needs. What a devastating days...
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