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  1. C

    My sister passed away on Jan 9th. She was diagnosed March of 2010. She was the healthest person...

    My sister passed away on Jan 9th. She was diagnosed March of 2010. She was the healthest person I knew until ALS. She fought it to the very end.
  2. C

    Knowing the right thing to say...

    Katie I have spent the last several weeks with my sister. On the 18th of april she had an appointment with the ALS clinic, at that time they told her she had lost 16 lbs, her lung function was down to 38%, she needed to be in a wheelchair and have a feeding tube. Her response was I will think...
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    Knowing the right thing to say...

    Katie Thank you for the response. I had read that there could be a problem with dementia and mentioned this to my sister who is a nurse, but neither of us knew the connection to bulbar ALS. The doctors have not mentioned this to us, maybe they will today, my sister has an appointment today with...
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    Knowing the right thing to say...

    My sister was diagnosed with bulbar ALS Feb 2010, she is now barely able to walk, can not talk and is in great need of a feeding tube. She was fitted for a wheel chair and it is ready for her, but she refuses to sign the papers for delivery, my younger sister made an appointment to see about...
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    New? Introduce Yourself - Say Hello

    I am here looking for help dealing with my sister who has ALS. I had cancer several years ago and joined a site like this and it really helped me get through the ordeal. I now realize it was nothing compared to ALS. I'm hoping this site can answer some questions for me.
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