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  1. J

    Do I have ALS?

    Hi again, I have researched this disease quite alot in the past week and spoken to many clinical lab tech's , my stepdads dr's are a joke , first make sure u dont stress about it I know it's hard but the more depression and axiety only makes the symptoms worse ! Firstly make sure your doctor is...
  2. J

    Als

    Hi I have also looked into this to help my stepdad , stem cell in Germany is NOT clinically proven and the risks are far more dangerous than ALS itself , they told me they could do it for my stepdad but it would cost £30,000 for the treatment! I find it disgusting and when I spoke to mnd...
  3. J

    Do I have ALS?

    So sorry to hear this news , my dad has just been diagnosed with pbp mnd and has been given 3 months to live , it's scary and freightening , it's such an awful disease but u have to keep motivated and try to stay as happy as u can :) My heart goes out to everyone with this disease , sorry i...
  4. J

    Pbp

    Hi everyone so sorry to hear about al these terrible diseases! Just wondering if anyone knows if bone marrow and stem cell transfers help mend pbp ? My father has just been diagnosed yesterday and they said he might only live for 3 months !:( he has had severe twitching and muscle spasms since...
    • Jennie
    • Thread
    • cell diagnosed diagnosis father muscle pbp spasms speech stem cell stroke transfers twitching
    • Replies: 1
    • Forum: Progressive bulbar palsy
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