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    Really scared with twitches and cramps

    Hello there ! I hope you're doing okay considering. I am living with ALS since dec 05 and it has been a challenge. My docters name is Richard Bedlack and he is the real deal; he does not sleep. Dr. Bedlack runs an ALS clinic in Durham, NC and they are located at 922 Moreene rd. However...
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    I hope all is well considering. By the way I am Dugan Smith and I am happy that you liked my...

    I hope all is well considering. By the way I am Dugan Smith and I am happy that you liked my message. We can only stay hopeful of good things to come. Take care !
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    Trach no Vent

    Hi Phyllis My name is Dugan and I hope you and your husband are doing okay. If he has moments where he can't breathe it is just a matter of time. Just tell him calmly he needs something to help. I had 91 % lung capacity when I did a sleep study and the study showed I stopped breathing 16...
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    New symptons

    How are you today ? good I hope. I was diagnosed October 2007 and it hasn't been easy. Anything is possible with ALS as you obviously know. I was in the army when my hands started loosing function. From what I have exsperiancd and seen in other patients the smallest parts of the body go first...
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    bulbar question

    Hello,hello I really hope this helps. I was diagnosed October 16th, 2007 and early 2006 members of my unit began telling me I was talking funny and made jokes. I had no idea. I think almost anything is possible with ALS. Atrophy of the tunge can distort your speech. It also can mess up your air...
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    ALS breathing problems vs asthma

    Hello there I was waking up coughing before I was diagnosed and it was very irritating. I joined the army in 2004 and started having symptoms about dec 05 jan 06. I never deployed yet I was diagnosed on October 16th 2007. My unit deployed 4 times before I was unable to perform job duties. One...
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    Double whammy my spirit is low

    Hello there brother I hope this helps. It took a while for my diagnosis to hit me but I soon turned to prayer. There is stemcell trials riight now that is making patients with als stronger. Standing for something really stands for something. If you have nothing left to give but hope or...
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    CPAP Question

    Hi I hope I can help. I used to have a cpap and I had trouble breathing with it. I had a similar feeling. I went with the bipap after a month. You might have better luck. After I started the BIPAP I slept very well. Personally I don't see how the CPAP helps.
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    Do I have a MND?

    hello there I was diagnosed with als oct 2007 and it hasn't been easy. I went many exams and tests before being diagnosed. X-ray,cat-scan,evoke-potential/for ms, various blood work to rule out everything from copper deficiency to lime disease and hiv, cardio-test to rule out asthma and possibly...
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    nurse says could be last days

    Hi stephanie I am sorry for what you and phil are going through. I was diagnosed in 2007 and things have't been easy. If he is choosing not to be vented then the time may come very soon. I will pray for you both. You need to be willing to tell him how it is when needed. I wish you both well.
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