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    To tube, or not to tube (feeding tube pros and cons)

    fedding tube I had my tupe put in a couple mo. now at first I didnt want it but since I have it now I wouldnt be without it. It really helps I use it when I want . The surgery is not that bad. You just have to take it easy for about a week. Davis06:)
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    BULBAR ALS Questions

    sorry about that Al Sorry about that I just thought you might of heard of it. They have been on me about a peg as I have been putting it of. I will get back later . Davis06
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    Question: about progression of ALS (how fast? )

    bulbar als Al I have bulbar als and my breathing sounds just like yours, bipap I youse just like you said. I was wondering did you start of with breathing problems, and can you still swallow good. I still swallow good but they want me the doctor at the clinic to get a peg. Thanks, Davis
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    tongue emg

    tougue-emg Melinda I have bulbar ,thats how they dig. me. 4-06. Sounds like that is were they dig. alot from what I have read. Tom
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    NEW member, not new to disease.

    bulbar als I have bulbar als to and was wondering how long did your mom live. Also how for the als progressed on her. Right now I have just lost my speech and breathing is bad I am on bipap machine at night. I am from Ga. usa. Thanks for any help. T. Davis
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    curious about what to expect in the future

    hello Holly I also have bulbar als and was in car accident which resulted in shoulder surgery in dec. 2004 in June 2005 I started getting the slurred speech. Was dig with als in april 2006. Now have the breathing problems and about have lost my voice. Good luck Daviso6
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    Hi everyone

    Gecc4 No how you feel . I was dig. with bulbar als in april 2006 also. I hadnt ever heard of it. It is bad but we will have to carry on. I try to keep busy it seems to help. I think I had it about ayear before I was dig. I have lost most of my speech but still have alittle. Have...
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    Bulbar onset, "normal" EMG?

    Colisa I was dig. with bulbar als in May, I also look back at having breathing and some of the laughing and crying spells about a year are so before being dig. Speech getting slured for about a year. Now it is some worse I now use a pipap, and speech seems worse. I also feel some...
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    davis

    Hi I am new. I got the news ALS in April 2006. It has affected my speech and breathing so far. It seems as my life has turned upside down overnight. I really am glad I found this support group. I stay busy to keep it of mine mine it seems to help. I have a bipap...
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