Search results for query: *

  1. K

    Need to know what I'm up against

    Do not put words into my mouth! I have not offered any advice or opinions on anyone else's symptoms and would not presume to do so. I will leave that up to you and you are doing an excellent job on lecturing people. I said my husband got lymes then had ALS. This was a fact. I also stated clearly...
  2. K

    Need to know what I'm up against

    Good for you. Pat yourself on the back. Revolting really this whole thread. I am so livid at your self righteousness . I lost a beautiful man to ALS who was not diagnosed whilst alive, a great mind, a professor. I am appalled at your lack of humanity to others who are frightened. Ignorance and...
  3. K

    In his hand and he lost a lot of weight and chest muscles started to atrophy. He fell down a...

    In his hand and he lost a lot of weight and chest muscles started to atrophy. He fell down a lot. Couldn't raise his arms, couldn't wash or dress. His speech was fine. He was an amazing talker, a professor. For him to have lost his voice would have been the ultimate tragedy. He was still able to...
    • kazzaj
    • Profile post
  4. K

    Need to know what I'm up against

    I don't know about that comment TRFogey, but I see that you are very knowledgeable and have an actual diagnosis. You may even be fortunate enough to have a good neurologist. If we had come to this forum with our fears. We would have been without a doubt one of these cases. This is a forum to...
  5. K

    Need to know what I'm up against

    Bellaxo, your fears and questions are valid. I agree with you and I am also unsettled by the very opinionated comments that are dismissive. We had no idea what was going on, but read a lot and didn't discuss our fears on any forums. I'm glad we didn't. The stress and heartbreak was plenty...
  6. K

    Need to know what I'm up against

    He went through many tests relating to lymes and was treated for lymes. He was still going through them 10 days before he died with a lymes disease specialist who of course did not take medical insurance. However I do have this understanding there is no proof either way if there is any...
  7. K

    Need to know what I'm up against

    My husband was diagnosed with Lyme's. He had antibiotics and an iv infusion which helped. The doctors gave him the all clear from the Lyme's but he continued to deteriorate. He passed away from complications of ALS 11/1/10. He was not diagnosed with ALS whilst alive, we went to immunologists...
Back
Top