Search results

  1. Vincent

    Nose bleeds.

    While this is usually used in reference to where I sit at ball games, I have issues with my nose bleeding or there is blood when I blow my nose. I use a bipap at night and more during the day. Yes I have a humidifier attached to the bipap. Is this just a thing that goes with bipap or has someone...
  2. Vincent

    Aspiration.

    I had a rather strange episode last night, I was sleeping in my recliner last night and woke up choking(not fun with a bipap on). I have had reflux for years, however I either burped or had one episode of reverse peristalsis. Not really worrisome except I aspirated stomach contents ( vomit ). My...
  3. Vincent

    Windows Eye Control

    I have just received a tobii eyetracker 4c as an early Christmas present. This works with windows 10 with their eye control app in ease of access. The drivers are free from tobii, and the eyetracker is $150 us dollars. The eyecontrol just has a mouse, keyboard, and text to speech app. It sets...
  4. Vincent

    Cap on g-tube

    I had a g-tube placed back in Oct. The one with the 6" tube protruding and a 2 port cap. I use it for crushed pills only. The nexium granules discolor the cap and now the tab for opening the cap is coming off. It clearly needs to be replaced, just the part with the 2 ports not the tube itself...
  5. Vincent

    Peg/rig

    I just got back from Toronto where I spent 3 nights in an exclusive hotel recovering from my latest piercing. Yes, I now have a RIG. Which they insisted on calling a PEG. I'm just using it for meds now, but I thought I'd better get it in while it's still an option. Not a pleasant experience but...
  6. Vincent

    South of 50

    I went for a PFT today ahead of my next clinic visit on July 12th. There is a sign right in front of the little booth that reads " the rt is not allowed to give you your results". But the computer screen is right beside the sign, and being able to read i was able to read the report. My FVC is...
  7. Vincent

    Weight loss.

    I have been sort of ticking along with what can only be termed as having ALS light. Foot drop on the left side in 2011, right side in 2014. Breathing was last tested at about 54% 6 months ago with some playing with increased bipap pressures of late. But all in all I still walk short distances...
  8. Vincent

    A new adventure.

    Late last spring I was told of an opportunity to help out ALS Canada by doing public speaking as an Ambassador. The Ambassador Program was started to provide speakers to deliver targeted talks to various groups. The idea being to have people who can speak from different perspectives on ALS from...
  9. Vincent

    Clinic visit

    Hot on the heels of the last visit in September, no changes since 2014, I was back at Sunnybrook today and I'm showing small changes, Still slow progressing but I'm starting to show UMN signs. I'm being ordered a lift chair. Wasn't expecting that so soon. More time with a physio. I was kind of...
  10. Vincent

    Energy Drinks for Fatigue

    I am guessing this has probably been discussed before, but is it ok to use energy drinks while taking rilutek? I am having huge issues with staying awake during the day and have started using energy drinks. They work but I do remember something about caffine and rilutek not being good for you...
Top