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  1. momap53

    PM, avatar & edit button

    I'm having a couple of problems and see that others have experienced these recently also. 1. PM capability has disappeared, unable to send or receive 2. The edit post button and my avatar have disappeared from my posts. Avatar appears on profile page but was unable to reset it Thanks
  2. momap53

    Characteristics of ALS Survivors

    Excellent article from the MDA about the characteristics of ALS Survivors. The Survivors: What Keeps Them Going | MDA/ALS Newsmagazine
  3. momap53

    Transfer Board

    I'm ready to start shopping for a transfer board. Who knew there were so many to choose from? I wanted to see what others have used and liked and why. I've tried a plastic one that my OT likes but didn't think it was very "slidey" At present I'd probably just use it for transfers in and out of...
  4. momap53

    Advance Directives - Five Wishes Directive

    Becky had asked me about the advance directive called Five Wishes that I used to outline how I want to be treated when I'm nearing the end of life so I thought that others might find this information helpful. Here in the US, each state has different guidelines for this. More information can be...
  5. momap53

    ALSA Webinar on Stem Cells

    Northeast ALS Consortium (NEALS) Don't miss this ALS Association / NEALS Webinar on March 13th 4pm Eastern Standard Time. Presenters will be Jonathan Glass, MD (Emory ALS Center) and Clive Svendsen, PhD (Cedars Sinai Medical Center) Stem Cell Rationale Webinar
  6. momap53

    Stem Cell Trial News

    Northeast ALS Consortium (NEALS) The second patient to receive stem cells in the cervical (upper back) region of the spine has been dosed. Fourteenth Patient Dosed in Neuralstem ALS Stem Cell Trial
  7. momap53

    Kevin Turner fighting ALS

    The Robert Packard Center for ALS Research at Johns Hopkins shared a story about Former Tide fullback Kevin Turner fighting ALS Former Tide fullback Kevin Turner is keeping a positive outlook despite the deadly disease that is making even the most mundane tasks difficult.
  8. momap53

    Webinar on FTLD and ALS

    The ALS association will host a webinar on FTLD and ALS today at 4:00 PM EST. Go to the ALSA website to sign up to participate. You will be able to type in your questions during the webcast and have them answered at the end of the speakers' presentation.
  9. momap53

    Dudley Clendinen

    The radio series "Living with Lou; A Good Short Life" with Dudley Clendinen (on NPR, Maryland in the Morning) came to a close this passed Monday due to Mr Clendinen's deteriorating voice. For those of you who may have missed the series you can listen to all of the series at the link below...
  10. momap53

    Giving Thanks

    An inspiring story about a special ALS patient from Oregon featured on the CBS Evening News... CBS Evening News with Scott Pelley - On the Road: Giving thanks to the community angel CBS Evening News with Scott Pelley - On the Road: Giving thanks to the community angel - YouTube As part...