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  1. cornflower

    How do you cope?

    Yes, and the diagnosis remains the same. We talked to a bereavement caregiver once and that helped a lot. I'm trying to cope with the feeling of helplessness by participating in the local Walk to D'feet ALS. I've also started praying again and I'm trying to find time to go back to church.
  2. cornflower

    How do you cope?

    Once again, thank you everyone for your kind words. My dad has very little use of his hands. You can literally see where the muscles have deteriorated. His legs are weakening as well. He's also does tube feedings to keep his weight up. However, the main issue is his breathing. He gets very...
  3. cornflower

    How do you cope?

    These kind words mean so much. I hope you know how much I appreciate this. Thank you.
  4. cornflower

    How do you cope?

    My father was diagnosed with PMA when I was a sophomore in high school. Like most teenagers, I had the false idea that we could live forever.. that loved ones would always be there. But as he grew weaker and weaker I realized how wrong I was. Fearful of his passing, I graduated early from high...
  5. cornflower

    Fasiculations

    It first occurred in his chest, then to his arms and legs.
  6. cornflower

    Im ready to die...

    My Dad has a form of ALS.. We always thought he was Superman. Twice the age of most of my friend's fathers he could out run any of them without breaking a sweat. He was diagnosed about three and a half years ago. I watched his hands deteriorate his legs and eventually everything. He hates...
  7. cornflower

    How do you cope?

    My father was diagnosed with a form of ALS when I was a sophomore in high school. Like most teenagers, I had the false idea that we could live forever.. that loved ones would always be there. But as he grew weaker and weaker I realized how wrong I was. Fearful of his passing, I graduated early...
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