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  1. J

    Still here thanks to RCH4

    Forum rules: Engage in quality discussion as though it were face-to-face; avoid profanity, no personal attacks, no harassment, calling-out, avoid being vulgar, offensive, etc. Use extra discretion and etiquette when a topic is sensitive. This post complies with the above rules in every...
  2. J

    Still here thanks to RCH4

    Just to let you all know, I have been taking RCH4 For two years and five months. Diagnosed in June 2013. Most of the damage was done by the time I started taking RCH4 in April 2016. I was already on a peg feeding tube, I had lost my speech and I was using NIV about 12 hours a day; but I still...
  3. J

    Still here thanks to RCH4

    Drugs are proved in costly clinical trials, not labs. They don`t have the money
  4. J

    Still here thanks to RCH4

    Well said!
  5. J

    Still here thanks to RCH4

    hi Tim, a similar thing happened to me. I have been on RCH4 for over two years and it has definitely slowed my progression. Being a member on this ALS forum, I wanted to share my good news but a certain moderator was so abusive towards me that I don't participate in this forum any more, only...
  6. J

    Still here thanks to RCH4

    He sent the info some time ago before it all got nasty
  7. J

    Still here thanks to RCH4

    RCH4 is being reviewed by als untangled. The RC Group have sent Richard Bedlack all the info required
  8. J

    Still here thanks to RCH4

    I understand, I really do, your defence of Laurie because I feel the same way about the R C group. Aside from supplying me with this drug, they have provided moral support and kindness. A little known fact is that they can organise home help volunteers from church groups globally. I understand...
  9. J

    Still here thanks to RCH4

    GregK I said I wouldn’t come back to this forum but I have to respond to your insults. Where in any of my posts have I made personal abusive attacks? My post re Laurie was a critique, nothing more. In your post to me, you start off by saying good riddance, you went on to call me emotionally...
  10. J

    Still here thanks to RCH4

    Thank you for posting your wife’s progress. GregK, a moderator, has just insulted my intelligence. I don’t need this upset. I’m afraid I’m taking myself out of this forum. Good luck against this pack of wolves x
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