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  1. L

    Today was a good day

    I feel as though I have started coming to terms with the loss of my beautiful Mother. Doing the ALS walk for Mothers Day meant so much to me. I was very emotional all day but it helped to be surrounded by people who understood. One of the the hardest parts of being the sole caregiver to my mom...
  2. L

    Walking for Mothers Day

    Thank you all for taking the time to respond. I feel like no one understands what it has been like except for the people in this group. It has been a great source of strength then and now. I WILL be thinking of all of you while I walk, and I will be back to check in. You have no idea how much...
  3. L

    Walking for Mothers Day

    This will be my first mothers day without a Mother. I will participate in the ALS walk in her honor. It will be just 3 months since she passed and not a day goes by that the memory of sitting in the hospital and having a DNR put in front of me to sign doesn't run through my mind. I miss her so...
  4. L

    Dear Mother Passed Away on 3/22/2018

    The phone calls for me too. I miss the phone calls. I’m sorry for your loss. I wish you peace and healing.
  5. L

    I need to know the signs

    You are doing an amazing job!! I understand when you say a part of you just wants to be done but a bigger part of you just doesn’t want to say goodbye. I’m glad she seems to have settled. When my mom was getting mucus in her throat (her lungs were always clear) they gave us a pill to put under...
  6. L

    Have I done all I can??

    Thank you all for your support. My mom did pass on Tuesday. I was holding her hand and the last words we said to each other were I love you. Then she went to sleep and passed 24 hours later. While my heart is broken and will never fully heal, I am at peace with her passing knowing she no longer...
  7. L

    LeelaaB’s mother

    Thank you all for your support. My mom did pass on Tuesday. I was holding her hand and the last words we said to each other were I love you. Then she went to sleep and passed 24 hours later. While my heart is broken and will never fully heal, I am at peace with her passing knowing she no longer...
  8. L

    I need to know the signs

    I am so sorry and can totally relate since my mom just passed on the 13th. During the last few hours, her blood pressure dropped to 70/40 and her heart rate was 110. That was in the final hours. Not sure if you have a way to measure these things but that is a telltale sign in many cases. We also...
  9. L

    Have I done all I can??

    Thank you. Her doctors thought I was a nurse because of my vast knowledge of ALS. I have all of you to thank for that. I’ve learned so much reading through all of the posts. I will be bringing her home tomorrow.
  10. L

    Have I done all I can??

    Thank you Kate. I’ll be needing them.
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