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  • Users: MarkD
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  1. M

    Ventilation Question

    My diaphragm was affected first basically When I was officially diagnosed about a year ago and I started using my trilogy ventilator to sleep at night, because I simply could no longer pull in the air automatically when sleeping. It's been a year now and I use the what I call the puffer when I...
  2. M

    Bidet that works with commode?

    this is the bidet model I just bought for my elongated toilet... One nice feature about this model is the remote functions with a very light touch, and I don't have to push hard on any buttons to get the various functions to work. TOTO SW3056#01 S550E Keep in mind you will want to determine...
  3. M

    PALS Having a Harder Time Breathing - Would Love Your Thoughts

    I have had breathing issues almost from the beginning. I manage things with three settings on my trilogy ventilator. One setting for the mask I use when sleeping, and one setting for the nose pillow I use during the day when I lie down in bed off and on. And lastly the third setting which I call...
  4. M

    Any recommended gadgets to help with loss of hand function?

    I can pass on some of what I have experienced if it will help. I've lost a lot of muscle in my shoulders and in my arms in my hands and fingers. There are some things I just can't do anymore but there are still some things I can albeit it takes a lot more out of me. For instance I can't really...
  5. M

    Some nice verses

    Below are some verses that have helped me. God is sovereign and in control. I accept my circumstance and I trust in God, who made me, and knows me, and loves me, and his plan is for my good. Romans 8: 28 And we know that for those who love God all things work together for good, for those who...
  6. M

    Suffering

    "But… I have questions concerning the Bible which I was told/taught so many times is/was the word of God. Really?" Notes from Voddie Baucham's sermon "Why I choose to believe the Bible" I choose to believe the Bible because… “The Bible is a reliable collection of historical documents written...
  7. M

    Looking for a mouse to use with only index finger and thumb

    The mouse I've been using for years no longer worked for me due to my weakness in my right hand fingers. I wasn't sure what to try with regards to a new mouse, so I decided just to get a larger one where I could put more of my hand on it. Anyway it definitely helped and I'm using larger mouse...
  8. M

    Swollen fingers advice

    Thanks for the advice. I got a call from my ALS therapist yesterday. I discussed my swollen fingers. He said what it is is that the weak muscles can't push back the fluid as easy as they used to. He said to raise your hand and the elbow above your heart and that would move the fluid more quickly...
  9. M

    Swollen fingers advice

    Hello, my arms and hands are pretty weak, my right hand more so than my left. My right hand fingers are noticeably more swollen, and when I bend them they feel tight because they're so swollen. I am on the computer a lot and I was thinking that they're swollen simply because they're being...
  10. M

    Neck shoulder pain

    Thanks, great advice all. I may try raising my laptop up some....I currently look down at it at a slight angle,..this may be a large part of the problem. I have a trilogy with mouthpiece at my computer desk...and take small puffs now and then when at the desk...I don't think contortions are an...
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