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  1. L

    Hey everyone....

    .....I'm still out here:) Not spending as much time on the ALS Boards as I was when first got the word. But I still remember all the support I got that helped me adjust. I'm doing okay, I guess. Hands, arms continue to weaken. Legs still strong, no problems eating or speaking. Fascics...
  2. L

    Road Trip!

    In the weeks following my preliminary diagnosis back in February, I was thinking about some of the things I wanted to do but hadn't yet done. One of those things was to take a cross-country train trip. I was scheduled to attend a conference the first week in May in New Orleans, and decided to...
  3. L

    Eric Edney and Even Better Now - Don't Be Fooled By This Scam

    Clay Foot Baths The clay baths are something I read about on Eric Edney's site.
  4. L

    ALS and aspartame and diet sodas

    Replying to various questions- Symptoms started sometime in 2003 with fasciculations, then weakness in right hand. My "secret" is probably that I just have something of a slow case. I just learned I have ALS two months ago, up until then I had horrible eating habits and drank lots of...
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    My pulmonary consult

    ...was today. After a thorough clinical examination the pulmonologist told me I had no evidence of pulmonary dysfuntion. He referred me for Forced Vital Capacity test to get a baseline. He then told me that in more than 20 years of seeing als patients I was the first he had ever seen with no...
  6. L

    My program

    In the last six weeks I've read a ton of information about ALS/MND. I now believe I know more about it than most doctors:-) After considering my options, this is what I've decided to do as a starting program, reserving the right to alter or amend it as new information comes to me. I'd...
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    Reading my EMG

    I requested that USC provide me with copies of all of my tests so that I can have them for any future neurology or ALS clinic consults. I received them today and the EMG/Nerve Conduction Study is very unnerving (to coin a phrase). I cannot read or understand the numerical evaluations, and...
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    ALS Functional Rating Scale predictor

    While surfing the net I came across the following website: http://www.outcomes-umassmed.org/als/alsscale.cfm It contains an easy do-it-yourself method for determining where you score on the ALS Functional Rating Scale (I'm somewhere between 43 and 44 out of 48 depending upon how I judge my...
  9. L

    Detox updates anyone?

    Hi All- As a newly diagnosed PAL I've gone down the same road as many of you- looking for answers, searching the internet. My brother did the same thing, and he sent me the Eric Edney book which I immediately read cover to cover. I've read through all of the posts from last year on the...
  10. L

    Fasciculations, what to do?

    Me again on fasciculations. Mine have gotten bad lately, in my arms, shoulders, abdomen, and some in my legs. During the day I don't notice much but they are very distracting when I try to sleep. I've begun experimenting with low doses of clonozepam (given to me for anxiety awhile back but I...
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