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    For Undiagnosed...Look to the Past

    For those of you who are suffering an illness, are undiagnosed and not sure if you have atrophy or any kind of changes....I looked through hundreds of pictures today, to make a collage for my daughter's 16th birthday, and what I found made me feel much better. I fell upon pictures of myself...
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    Annmarie's Concerns Have Turned To Reality

    My dear and caring friend Annmarie went to see Dr. Simmons today. She felt as if she was going to see the grim reaper all week. She has had EMG's and all the other testing with fluctuating diagnoses and symptoms. Her neuro at Hershey, who says he has diagnosed many ALS patient's and that she...
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    Interesting Local Newspaper Article

    Speaking of incidents of ALS in small towns, this appeared in our local newspaper today. Our city is approximately 30,000-33,000. If anyone lives within a few hours, it would be great if you could come...
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    Those frustrating neuros

    On 7/11 I went to my neuromuscular clinic to get the results of my muscle biopsy. The new resident came in and did a full exam first, without filling me in on the results. I did have some anxiety and tried to make small talk with him, but he held his head high with one of those...I am a...
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    Muscle Biopsy-YUK! Jamie Don't Read!

    Annmarie, you asked for it....you guys up for a little story?! Well, I started off with a generous dose of anxiety. I noticed it kick in about fifteen minutes from the hospital. So, I popped a Xanax. It didn't do much. After walking about 1/2 a mile through the university to the clinic...
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    Is it safe to come back?!

    I left the forum a short while ago because I find myself on the fragile side because of my illness and couldn't take, what I considered to be "attacks" by a member or two about a couple of my posts. I apologize for my outburst and hope my friends here have not changed their view of me. I have...
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    Dental Procedures

    Has anyone with the common symptoms of muscle twitching, weakness, muscle cramping---the whole works----had any dental procedures? I need to visit the dentist and know I will need some work, but I am terrified of what could be the aftermath. I have read a couple of posts from some who...
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    Thoughts

    With the recent loss of Chad Bowman I have come to realize how much all of you mean to me. I know we have never met, but all of you have shared some of my hardest moments. You may be internet correspondents without a face, but you have given me strength, hope and a way to look toward the...
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    Great Doc Appt.

    Hi everybody I thought I would share my very good experience at the MDA ALS clinic in Rochester, NY on Thursday. My appt lasted from 9:30 am until 2:30 pm with a lunch break from 11-12! I had a doctor entering the neuromuscular specialty and two specialists. The fellow (meaning finished med...
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    Good News/Bad news

    Hi all you caring readers! I had my appointment yesterday at Upstate Medical Neurology. Since we all need to hear some good news about one another, I will tell you that first! The doc said my reflexes were great! He said my weakness wasn't too bad. But, after the exam he ordered EMG, blood...
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