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  1. mytmouz

    My next step in this journey...

    I've had a downturn, and can barely type. I am copying this and posting it on my usual haunts. I have a clinic visit end of the month, and they will most likely prescribe some type of vision systems to type. If it works, I shall return. If not, this will be my last post until I see you on the...
  2. mytmouz

    Feeding tube question.

    I didnt want to clog up a different thread, so here is a new one... I am PALS, and in reading the other thread, there were some CALS posts about waiting on feeding tubes, due to their PALS wishes, then they were done. (As I understood while reading). Is that possible, despite the PALS wishes...
  3. mytmouz

    Powered wheelchair question...

    I am picking up my powered chair, and one of the things to be decided is what driving array to get for when I lose limb function, which is rapidly approaching. I lost my right leg first, followed by a rapid decline of the left. I am rapidly losing ( to me) my right arm. Rapidly means since July...
  4. mytmouz

    Riluzole/ Radicava discussion...

    I try to use the search function as much as possible, but I have a few questions I don't see an answer for. The long Rilutek thread is no longer available to open for discussion. Is there a reason due to thread age, or was it for something else. All updates on the subject seem to cease on here...
  5. mytmouz

    My turn in the bowl...

    I have been lurking for a while, but decided to join in. I was officially diagnosed 3 weeks ago. My local neurologist and I suspected as much, but treated for CIDP until it could be confirmed. He sent me for a referral ah UAB, and they did a 3rd EMS, which confirmed it. I had other issues, such...
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