Search results

  1. BlsdMama

    Extra Wide Doors?

    When you needed larger doors, where did you find them? I don't want a barn door because it's for my bedroom and it won't work with the layout anyway. What I really need is a 40" pre-hung. Does anyone know if such a thing exists? I could probably do a 36" with no trim, but it's tight and right...
  2. BlsdMama

    Bummer

    Looks like I was potentially not a limb onset. All that rib pain? Looks like my diaphragm isn’t in lovely shape. Sigh. Up at Mayo for the day. MIP and MEP values were bad - 28% and 38% respectively. But the FEV/FVC ratio was 85%. So why the bad results in one area but decent in the other? Can...
  3. BlsdMama

    Experience with USAA and accelerated death benefit?

    We have two policies - one through my husband’s work for $250k and another through USAA for $500k. The ADB through USAA has the 12 month stipulation. I was wondering if anyone has worked with them? I was diagnosed PLS shortly after getting the policy. I flipped to ALS in October via EMG. Headed...
  4. BlsdMama

    Silly, but..

    Is the forum for useless things too? If not, I apologize for asking! Monday was delivery day of my PC. She is pretty and shiny and all I had hoped for! ;) But, she is wreaking havoc on a dining room area rug. There are two. One stays put and the other is being drug about. I can't decide if it's...
  5. BlsdMama

    Help me understand disability benefits?

    So, because of household income, I will not be eligible for SSDI. I haven’t worked in the last 20 years - I’ve been homeschooling our kids, youngest is currently 5. I have twenty credits from 1990’s. However, none are from the past five years. Does the ALS diagnosis override this? We knew...
  6. BlsdMama

    Flip

    Three year anniversary EMG to confirm still PLS. Nope. Denervation and fibrillations in leg and back. New date of diagnosis - 10/14/19, ALS Honestly? We knew it was coming. I feel as though I left limbo. Hard on some of the kiddos, especially the 11yo. Going to drive to college tomorrow to...
  7. BlsdMama

    ALS/FTD link and testing

    Info: My grandmother passed at age 80. Diagnosed with FTD at 77-78. She had 11 kids. None are unhealthy. I have a current dx of PLS. We're still waiting for the dirty EMG - I've had four so far. Three years into the first symptom (age 40) - drop foot first, then weakness, UMN signs...
  8. BlsdMama

    Two wheelchairs?

    Here’s an interesting question. I had my wheelchair fitting/consult a week ago. Went great and they helped me choose the Permobil F5 VS. Should get it in November. Now we find out, due to DH’s company being bought up, they will be switching carries - from BCBS to Aetna in January. I’ve seen...
  9. BlsdMama

    Wheelchairs

    I have my "fitting" next week at the ALS Clinic. It's scheduled between PT and my chosen provider. I have private insurance and the cost of a "covered" chair (whatever that means) will be the remaining part of my deductible for the year - $400. This will be my power chair. What will this...
  10. BlsdMama

    Rib cage pain?

    I’m a slow progressor/possible PLS, limb onset. Even before drop foot, I had ribs that would “fatigue” for a better word. Then I’d feel pain. It’s really only getting more constant. Does this happen to anyone else? Driving or doing a lot of sitting up is the worst aggravator. Laying down or...
Top