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  1. L

    In loving memory of Burt

    Burt was seen at Pa. Hospital by Leo McCluskey
  2. L

    In loving memory of Burt

    Thank you all for your prayers and kind thoughts.
  3. L

    In loving memory of Burt

    My dear husband, Burt, died exactly 2 weeks ago from the ravages of bulbar ALS. He got aspiration pneumonia, and nothing could help him, with his increasing weakness from progressive ALS. He was so brave, and he never complained. We did get to honor his wish to die at home. I miss him terribly...
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    Feeling totally overwhelmed

    Colisa, Have you thought about having a beef and beer" fundraiser? Maybe your local ALSA office could get you started with that or maybe advertize through your kids schools, etc.. You can raise a lot of money that way. Maybe you can get an interview by your local newspaper/ trade journal to get...
  5. L

    How does one keep his/her spirits up?

    Thank you! :razz:Thank you for being candid and supportive. Letty
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    How does one keep his/her spirits up?

    Hi All, My husband was DXed with bulbar onset 2/08. I am on a combo of antidepressants to be able to supervise his medical care, foods, medications, etc.. I do manage to get out sometimes, but how do caretakers manage to deal with the grief and sadness themselves. Thank sso much. Letty
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    for you fellow "bulbars" out there with voice issues..

    PDaddy, My hubby's Dr. told him to use a spoon to clean his mouth out after eating since his tongue can't do it anymore. It seems to be working. Letty
  8. L

    alternative dental treatment

    Hi Friends, While on vacation in Ca., my sister-in-law, who has always had TMJ problems, made an appt. with her TMJ dentist to see my husband who has PBP. He told him that he is treating another man with serious Parkinson's symptoms and has helped him by evening out his bite so that cranial...
  9. L

    Tim is in the Hospital/Pneumonia

    medication? Lorie, You're going through such a rough time- are you taking an anti-depressant? The right one can help you cope. Letty
  10. L

    Tim is in the Hospital/Pneumonia

    so sorry! Lorie, I'm so sorry that this has happened. I'm glad that you're laying down the law for that mean nurse. Maybe she should consider a career change?:) Letty
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