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  1. Nanders

    Lost ‘Spasticity? Or Tone?’ Overnight

    Hello all, I’ve been in rehab for the second tIme, for another fall. Nothing broken.. but I’m not able to go home anymore. Could be worse! I’ve lost a lot oF both upper arm & hand function in last month. I woke this morning & went to PT..went to stand in the bars & my normally tight...
  2. Nanders

    In Hospital, What An Experience...

    I fell last Saturday and injured my R hip & low back. Thank God nothing is broken, just soft tissue damage. The whole experience of being in the hospital as a PALS is soo different than before! It’s amazing how many healthcare professionals do not know about or how to care for ALS patients...
  3. Nanders

    Dealing with the holidays

    Hey Everyone.. I know I’m new to the group.. but it saddens me to see my ‘new friends/family’ reacting to each other this way. OUR decisions, feelings & reactions are just about the only certain thing we can have ‘control’ much in this process.. no matter what title we have. Depending on...
  4. Nanders

    Overwhelmed .. need some advice/help!

    I have so many appts/people calling/decisions to be made I’m overwhelmed.. I started OT/PT early this week & honestly I don’t see the point. I’ve been doing my own ROM, (which they found to be very good)I know about transfer training ( had multiple surgeries in past with p/op PT) My OT wants to...
  5. Nanders

    48 Hours into ALS Diagnosis

    Hello I'm Nancy.. Just diagnosed with psuedo-bulbar ALS 2 days ago. I'm 55 yo with 3 adult children & 2 grandsons. My youngest who is 26 and a paramedic is in total denial.He won't talk to me. My 2 older children ( oldest is 32-dtr & 30-son ) are dealing fairly well. Wanting to know everything...
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