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  1. J

    How are you? The Remix.

    Hmm, same question as before. I still don't know how to answer. On Tuesday, it will be 3 months since my DH gained his wings. I think I miss him more as the days pass. Mornings and night are the hardest for me. I used to refer to those times as "the odds-and-ends" of my day. When everyone...
  2. J

    Paperwork. Grr...

    I hate all this paperwork. I'm caught up in and endless loop today. 2 different investment accounts are requiring something called a signature guarantee on their forms so that I can transfer funds to my name. The signature guarantee has to be done by a bank officer. Called today and he told...
  3. J

    6 weeks

    Today it is 6 weeks since my DH passed. It's the first I've written here since. So many feelings. I had always felt that I had lived my life with no regrets, but now, I'm feeling so many. I regret that we did not travel more when he was first diagnosed and he was still mobile. I regret...
  4. J

    My heart is broken, but he is free

    My husband's soul left his body on Tuesday, September 10th. He passed peacefully at home. He was a good man. The love of my life. Loving father. Loyal friend to many. I know with every shred of my being that he is now in the arms of the Lord and he is at peace. Until we meet again, my...
  5. J

    How many of us?

    https://www.inquirer.com/health/caregiver-burnout-self-care-20190814.html
  6. J

    Lift Chair Question

    For those of you with Golden lift recliners, can I get my PALS into it with a hoyer? I have been exclusively using a hoyer to transfer him for a while now. I'm pretty sure he could not stand on his own even with support, even just for a pivot transfer. (I'd be scared to death to even try.)...
  7. J

    How are you?

    How I hate that question now. It's become almost a default greeting. I know most people are trying to be kind by asking, but I honestly don't know how to answer anymore. I usually just say "We're OK" or "We're hanging in there". But honestly, we're not OK. And I'm sometimes just hanging...
  8. J

    Question about alternate PWC controls

    At clinic earlier this week, DH explained the troubles he was having controlling his PWC. He has lost just about all control of his hands, save his right thumb. The wheelchair rep suggested trying a different joystick, but when the OT came in (wish they could have been there together) he...
  9. J

    Voice Access App for Android

    I came across an blog post about the Voice Access app for Android. I downloaded it and tried it out on my Samsung tablet. It's very easy to use and would really help PALS who cannot use their hands, but still can use their voice (like my DH). I'd add the link, but I know that can sometimes...
  10. J

    Well, that didn't go as planned...

    DH had his long awaited (3 months) wheelchair mods done yesterday. He got elbow blocks and arm supports, lateral supports, and a new headrest. He is not happy with most of them. Says they restrict his movement too much. He says he wants me to take them all off and go back to what he had, but...
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