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  1. J

    Johnnyd has past.

    Hello, My name is Vanessa Arangio. My father John, aka Johnnyd, posted here. I am not sure how frequently he posted, or how many of you spoke to him, but I felt the need to inform. My father passed away just over a week ago, on June 23. He was 42. He fought his battle with ALS for five years...
  2. J

    Living with this "ALS THING"

    Hi Carol It's nice to hear from you. i have started on my morphine decent. slowly, I might add. just enough to keep me comfortable. I receive it by iv pump with the occasional bolus when needed. i don't know how long I have but I will post until I can't. My wife wants to keep me around as...
  3. J

    ex on bipap 18% breathing

    why don't you ask your son's fathers doctor?
  4. J

    Bipap

    bipap Evi once again I'm sorry about your mother. However a bipap is not bad. It helps with breathing, . I have used a bipap at night for well over a year. but phenomena is not good john
  5. J

    My mom

    re old site hello evi. I actually read your concern on the old site. This is the new site. Same thing. Re-register as some of us already did. I'm sure she will notice the same and joy will soon join us here again. if I can help. I am here also. it's sad to say. but your father is probably...
  6. J

    Team Help! needed.

    :arrow: Dear Editor Topic Health ALS. Amyotrophic Lateral Sclerosis (aka. Lou Gehrig's Disease) This disease must be made more aware of as statistics climb. ALS destroys motor neurons that are an important link in the nervous system, and through which the brain controls the voluntary...
  7. J

    information to the newly diagnosed.

    :idea: :idea: :idea: :shock: Topic Health ALS. Amyotrophic Lateral Sclerosis (aka. Lou Gehrig's Disease) This disease must be made more aware of as statistics climb. ALS destroys motor neurons that are an important link in the nervous system, and through which the brain controls the...
  8. J

    information needed

    ALS HEY Nikk. don't panic brother. it's quite rare at your age to have als. however, yes ask your family doctor to send you to a neurological doctor or Als. clinic. often at the early stages the symptoms mimic other concerns. It's not als until you are diagnosed with it. good luck brother...
  9. J

    Is being "a loner" an ALS trait?

    trait? I wish I could answer exactly what he is feeling. I was 37 too when I was diagnosed. I was angry too. And at times, I still am. he needs help as I did. This disease is so devastating that it affects your emotions. "Why me" crossed my mind more than once. try and get on his good side and...
  10. J

    An Upward Glance

    AN UPWARD GLANCE Have you heard the parable about an old dog that fell into a farmer's well. After assessing the situation, the farmer sympathized with the dog but decided that neither the dog nor the well were worth the trouble of saving. Instead he planned to bury the old dog in the...
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