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  1. J

    Bulbar Onset Diagnosis - Nasal blockage

    Thank you for your replies. Tillie, I know you're not a doctor but what dosage of Alka Seltzer, how often and what sort of citrus drinks please? All advice greatly appreciated. Is there information I can access somewhere on breath stacking please? Many thanks JC
  2. J

    Bulbar Onset Diagnosis - Nasal blockage

    Thanks Mike for replying. I wasn't sure if this was a common symptom or not? It could be an allergy as you say I just don't want to keep making doctors trips if not necessary we seem to be living our lives around appointments at the moment! JC
  3. J

    Bulbar Onset Diagnosis - Nasal blockage

    Hi, I'm back! After my husband's diagnosis a couple of months ago, we have been travelling and visiting friends and family so our feet haven't touched the ground. but back to reality now for a few weeks before we go off again! Firstly, thank you all so much for taking time to reply to mine...
  4. J

    Bulbar Onset Diagnosis

    Thank you once again for your personal replies, all individual experiences give me a much better picture of what to expect, i know it isn't scientific but it all helps! I think we will just try and pack as much in as possible in the next 6 months and keep praying that he is a slow progressor...
  5. J

    Bulbar Onset Diagnosis

    Thank you all so much for taking the time to reply to my post, i have found it all very re-assuring. I understand that every case is different, but i have been panicking that he will lose his voice before our daughter comes back from travelling later this year and have been praying this will...
  6. J

    Bulbar Onset Diagnosis

    My husband finally had his diagnosis of Bulbar Onset confirmed last week and we are naturally devastated. Whilst he wants to know nothing about what might come next and when, I feel i really want to know everything and need to know what to expect. I have read many posts on here and everyone is...
  7. J

    How do we know it is MND?

    Jenn Our situations sound so similar, thank you so much for all your detail. My husband is still in denial and shock, so discussing anything at the moment is so hard, but I will definitely start making enquiries myself and get as prepared as possible. He was woken with cramps in his wrist in...
  8. J

    How do we know it is MND?

    Nikki Thank you for your reply. I personally am thinking about recording his voice so he can use his own voice to communicate, the issue is that he doesn't want to know anything about timeframes at the moment, so I can't rush him without panicking him and I believe the stress is making things...
  9. J

    How do we know it is MND?

    Worse nightmare came true yesterday. we saw the neurologist who has confirmed my husband's diagnosis of Bulbar onset ALS. He has suggested having a further NCS/EMG test to see how things are progressing and is referring us to Queens Square, university college hospital London. I know we are...
  10. J

    How do we know it is MND?

    Kristina1, thank you for your thoughts. As you say, the fasciculations didn't start/be noticed until after the first irregular EMG, but may well have been there for some time. He has had voice/speech changes for approximately 6 months now, no swallowing, saliva or choking issues, yet. No...
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