Search results for query: *

  1. L

    Didn't think I would be back

    You're quite right. I must have done that last year by mistake. I've edited that. Thank you.
  2. L

    Didn't think I would be back

    My first neurologist diagnosed me with HIV Associated Vacuolar Myelopathy and didn't think I had ALS (less than a year ago). The second neurologist concurred and all the extensive testing was normal. My I.D. doctor thought I had ALS and just recently I went to a neurosurgeon to find out what...
  3. L

    I was misdiagnosed - I don't have ALS

    Thank you! I'm going to live until I can't. It might hurt here and there, but I am determined. Thank you for the love.
  4. L

    I was misdiagnosed - I don't have ALS

    Wow. I am now in contact with the person I told you all about with the youtube videos. I'm feeling good and upbeat about it all. I'm not leaving this world without a fight. I'm so blessed and I never realized it in the way I do now. Everyday is a blessing and we need to realize what we have...
  5. L

    I was misdiagnosed - I don't have ALS

    Thank you to all those heartfelt comments. It really means a great deal to me. You have no idea.
  6. L

    I was misdiagnosed - I don't have ALS

    Sadie, I'm just glad there are people like you out there. Thank you! It's a rough world. Keep your strength and no, it's not right.
  7. L

    I was misdiagnosed - I don't have ALS

    Thank you for the responses! There is an emotional component to this that comes and goes. It comes out of the blue. I kept telling my psychiatrist I wasn't depressed. I kept telling her over and over that I thought something was wrong with me "organically" in the mental dept. Turns out I...
  8. L

    I was misdiagnosed - I don't have ALS

    After all these decades of HIV, I really don't need the support. I've got a great deal of love in my life, I'm just really grasping at this diagnosis. It came out of left corner. I expected to live a normal life for the most part. For all these years being HIV positive, the stigma never went...
  9. L

    I was misdiagnosed - I don't have ALS

    Neurology is a very fine field of diagnosis. My respects to the those in the field. My actual diagnosis is HIV Associated Vacuolar Myelopathy. It runs nearly the same course of ALS, but is a bit faster. It's been over three decades of being HIV positive. I held fast and hard in keeping my...
  10. L

    Bulbar issues??

    Error in comment
Back
Top