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  1. M

    Dry Mouth and Excessive Saliva

    RE: SALIVA Dea Bert: Thank you for your reply. Did you also have speech problems along with your excessive saliva? I think we are going to go with the patch. The saliva is so bad that we thought we would take the chance. What type of ALS are you suffering from? It seems it hits in all...
  2. M

    Bulbar Palsy

    RE: BULBAR PALSY Dear Lisa: Thank you for your response. How long has your mother been diagnosed with Bulbar? How is her speech? My mother's speech is horrible because she can't move her tongue, except to stick it straight out of her mouth. SHe is now having problems eating because she...
  3. M

    Bulbar Palsy

    Hi. I am a new member - I just joined yesterday. I am so glad that this site exists, because I feel so lost and alone with this disease. My mother was diagnosed with bulbar palsy and I am trying to find others that also have this or know people with this. ALthough there is an ALS chapter...
  4. M

    drug cocktails

    RE: DRUG COCKTAILS Dear Kim: Thank you for your response. How did Tim figure out the proper dosages? Did he find a doctor to administer the drugs for him? Where my mother lives it will be almost impossible to find a doctor to do that, thus we are hoping to take it into our own hands. Any...
  5. M

    Dry Mouth and Excessive Saliva

    Hi. My mom was recently diagnosed with Bulbar palsy. I am wondering if there is any one out there who has suffered with her same symtpoms - which are unusual so accepting this diagnosis as true is difficult. She began with a slight slurring of her speech approx. 14 months ago. She had almost...
  6. M

    drug cocktails

    Hi. I am wondering if any one has experimented with "drug cocktails?" THere seems to be some great signs of controlling ALS with the combination of certain readily available drugs such as creatine & minocycline combined with Rizule. I am wondering if anyone has tried these combined together...
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