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  • Users: Peg B
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  1. P

    MMN Side Effects?

    Hi, I am sorry in my last reply I made a mistake: To sign up to the MMN group on Facebook go to multifocal motor neuropathy not MMN the multifocal... group has 105 members. Sorry, Peg
  2. P

    MMN Side Effects?

    I check this every few days. I was first DX with ALS but have had IVIG since Jan 2007. I have never heard of these issues as part of MMN except it was mentioned once in an article as very rare. I would urge you to see what the neuro says. In addition there is an MMN group on Facebook and...
  3. P

    MMN Side Effects?

    Hi, I check this every few days. I was first DX with ALS but have had IVIG since Jan 2007. I have never heard of these issues as part of MMN except it was mentioned once in an article as very rare. I would urge you to see what the neuro says. In addition there is an MMN group on Facebook...
  4. P

    THANKS to forum for MMN section

    Hi, It's been over a year now since the last entry under this MMN section. I just want to thank the forum for keeping this section open. There are still some of us who look here to see if others have posted. I am grateful that this has been a place to come for information and sharing. Thank...
  5. P

    Hi, I am so sorry I did not see this post. I am probably too late too help but here goes...

    Hi, I am so sorry I did not see this post. I am probably too late too help but here goes. With solid diagnosed of ALS the rules are different. The 5 month wait period is waved. Check the SS website. In my Short term Disability I was paid 66% of my pay without taxes taken out until SS...
  6. P

    My husband was just diagnosed

    Hi, Suggestion: Try your church etc. Even if you are not afilliated with a religious group, they may have people who volunteer to help. 'So hit up any organised religions around you. Also Knights of Columbus, Moose, Masons, ete. any civic club or groups may be a source of help. Even...
  7. P

    Please help: ALS fear consuming my life

    HI, Just want to jump in on Lyrica. My girlfriend took it had major trouble including big weight gain. I was offered it but did not take it. I thought it had to do with nerve pain. That is why she took it. She has Fibromyalgia. Look at the side effects. Don't take it just because your Doc...
  8. P

    might or might not be MMN

    Hi, I have MMN, But was first diagnosed with ALS. After a couple of times they found 1 partial conduction block. I also do not have the blood alegens (sp?) My second opinion neurologist said, "Atypical ALS or "MMN." She decided to give me IVIG. If I responded I had MMN, if not then...
  9. P

    In limbo....MMN or motor neurone disease...HELP!

    Hi Lola-77, I am sorry to hear about this turn with your dad. Sarah was exactly right and very helpful. Let me repeat that ALS DOES NOT RESPOND to IVIG. I was first Dx with ALS then possible MMN and was put on IVIG to see if I responded. I did and have MMN. I would like to add a few things...
  10. P

    Hey Scott, Great to hear from you, but so sorry for the news. If you can get the full bad and...

    Hey Scott, Great to hear from you, but so sorry for the news. If you can get the full bad and new room that would be great news. I sure will pray for you to be able to do that. I keep thinking about those tiny full bath in Akea and the possiblility of putting in a shower on the main floor...
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