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  1. V

    Back again

    It’s over 12 months since I first suspected ALS and went down a google rabbit hole. It’s 8 months since I went to my first Neuro appointment and 2 months since my 2nd visit. Both times I sailed through the clinical. I have thought about ALS every single day for 12 months and in the past 2 months...
  2. V

    Find myself back here again

    Hi, so I took your advice and saw the same Neuro as I did in Sept yesterday. She performed the same strength tests and said they were completely normal. She said if it was anything sinister there would be a very marked difference in the 6 months that had elapsed. She said she has a lot of...
  3. V

    Find myself back here again

    Had some very serious ALS concerns back in June. Calf twitching and stiff muscles in my legs with cramping in my arms and the odd twitch around random places. I ended up going to a private Neurologist last Sept who said benign fasics and I sailed through the strength tests etc 8 months later...
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    Wits end with symptoms

    I wanted to close the loop on this. Saw neurologist today, completely normal thorough exam. Laid bare my fears and she said absolutely no evidence of MND/ALS and more likely benign fasics syndrome although she couldn’t illicit any twitching when she checked (!) like you have all said, the...
  5. V

    Wits end with symptoms

    Doctor is referring me. Now have twitches in left shoulder, right thigh, both calves, buttocks. I am absolutely terrified
  6. V

    Wits end with symptoms

    Don’t have appointment for another two weeks but still suffering. Fasics are wild in both calves, tight feeling around knees (terrified this is weakness starting) right hand is awkward and lost dexterity. Could I ask please whether ALS can start in both right leg and right arm simultaneously please?
  7. V

    Have exactly the same symptoms as you. The calf twitches 24/7 and the weird hand stiffness...

    Have exactly the same symptoms as you. The calf twitches 24/7 and the weird hand stiffness. Driving me to my wits end
  8. V

    Wits end with symptoms

    In your experience and knowledge does ALS tend to start bilaterally? For example could you have symptoms in your left hand and right ankle simultaneously?
  9. V

    Wits end with symptoms

    Good afternoon I have been having some horrible symptoms that point to ALS and, having read and observed this forum over the last few weeks and tried hard not to register, I’ve caved as I’m frantic with worry I started in April with tight cramping hamstrings - they would go into spasm every so...
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