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    Hey there; Sorry I just read your message. I'm north of you, Denman Island. Do you go to the...

    Hey there; Sorry I just read your message. I'm north of you, Denman Island. Do you go to the support grps? If so, we probably know eachother. I just posted on my thread. I'm annoyed everything moves so slow in the medical system, then I go to the respirologist and he doesn' t have all the...
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    When to call for help?

    Quick update: Finally saw the respirologist. The night time study still wasn't back! The pft's weren't terrible considering the diagnosis, not sure what exactly means and I didn't ask. I called my GP's office and they called the company interpreting the night time O2 test. Turns out things...
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    When to call for help?

    I'm still grinning after reading your post. I'm happily post menopause at 56. I had a relatively easy time.
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    When to call for help?

    That's a good idea Barbie. I'm going to get the results of the tests first so I can back up my complaint with hard facts. On the bright side, I read on this forum that those little nose " thingies", Breathe Right, strips can help. I got some, and while they aren't a solution, I do notice a...
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    When to call for help?

    My GP came by today and has ordered pulmonary function test for the end of the week. He also has me scheduled for a. Night time O2 study sometime prior to Friday. He wants to get those things done before I see the Respirologist. He's advocated for me before so I am confident he'll get things...
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    When to call for help?

    Update I called the ALS clinic and spoke to the nurse who wasn't concerned. She thought I probably had a virus or congestion. She said if I hadnt heard from the Respirologist's office in 2 weeks to call back. I put the whole problem to the back burner, however my partner is concerned I'm not...
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    When to call for help?

    Thanks for your reply, i will contact the clinic. After reading some of the posts I think I posted in the wrong forum, sorry about that. I only saw posts about breathing problems in the ALS forum, so posted my question here. Take care
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    When to call for help?

    Hi i was diagnosed with PLS last year and have had a steady decline. Last week I was at the ALS clinic in Vancouver for follow up. The neurologist was setting up a Respiratory consult. I have difficulty speaking, have had to modify my food choices to limit choking etc. I woke up this morning...
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