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  1. IhavePLS

    What is walking like for you?

    Hi all, In the thread started by ShiftKicker, some of us mentioned the strangeness of this disease, and how oddly unfamiliar the symptoms can be. Along these lines, are you able to describe what walking is really like for you? How does it feel? Can you describe the feeling/ sensations you have...
  2. IhavePLS

    Stabbing, highly localized, severe pain

    Hi all, Recently developed a new symptom -- one that is very painful. Whether it's related to PLS (not everything is!), I don't know. I've begun to experience severe pain in my hands and feet. It's not widespread pain, but highly localized, as if someone just stuck an icepick through some...
  3. IhavePLS

    PLS + "axial involvement" = pain

    Hi to all, Recognizing that I ask a lot of crazy questions here (and have my share of marginal ideas....;)), I thought I'd ask the following: Many of us develop hip, back, neck, shoulder, arm, and hand pain. We don't think of it this way, but over time, PLS has its way of adversely impacting...
  4. IhavePLS

    Walking and knee position....

    Hi everyone, I have a question about walking and spasticity: I've always heard it said that one's knees should be only very slightly forward-bent when walking (not locked entirely). As I was walking this morning, and for the very first time, I noted that my knees are clearly more forward-bent...
  5. IhavePLS

    "Medical" marijuana

    Hi to all, Sorry if I'm going over old ground, but I am curious as to whether any of the PLSers here have tried marijuana (whether legally or illegally) for symptom control? I'm sure there will be opinions (strong ones at that) on both sides of the issue. Therefore, I'm asking NOT about...
  6. IhavePLS

    Do your arms hurt?

    Hello everyone, A very short question: Do your arms ache? In the past week, I've had a deep ache in my forearms and hands. I don't have any muscle wasting in my arms or hands, although they are smaller in size, perhaps, due to decreased use. As I think about it, this is essentially similar to...
  7. IhavePLS

    Neurologists - and why they are so slow to diagnosis!

    Hello to all, It's the strangest of things, actually...in another thread in the PLS forum, Mike from Maine raised the issue of UMN-Dominant ALS, asking whether PLS and ALS are part of a continuum -- or if they are separate diseases. After all of my postings in that thread (admittedly, I do...
  8. IhavePLS

    Acute exacerbations of symptoms

    Hi to everyone, I apologize for not having had been on the forum for quite a while, but I've been awfully busy (no excuse, as I also need to support other with my insights on this nasty disease). Therefore, mea magna culpa. What are your thoughts concerning acute exacerbations of PLS...
  9. IhavePLS

    Toe tapping test (TTT)

    Hi to all, I'm very curious: Aside from Babinski, hyperreflexivity of the knees, etc., etc., one of the very first tests my first neuro gave me was the "toe tapping test"... This is done with your heel firmly planted on the floor, and then you move your toes up and down as rapidly as you...
  10. IhavePLS

    Neurontin and Different Types of PLS Pain?

    Hello again to all, I am so very sorry for asking another question, but as a neophyte (who thought he knew quite a bit about PLS), I am so relieved to find others who have essentially shared my experience - and who understand the discomfort, pain, fatigue, and weakness that are all associated...
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