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  1. Michellesews

    Michelle

    Hello everyone...I've been absent awhile. My PALS passed away early Thursday morning. I had the privilege of being with him when he passed. This past year + has been the hardest I will ever face...and it seems the aftermath is even harder. Although his diagnosis was 09/15 he was ill for...
  2. Michellesews

    CALS Roll Call Continued

    Here it is Wednesday again. PALS experiencing rapid decline. Dx Sep 2015. Wants no tubes but does use a Trilogy per mask, and now on it nearly 99% of the time. Diet has evolved to mostly smoothies due to swallowing issues. We now have a van but he rarely has the strength to go out, of...
  3. Michellesews

    I'm so excited, and I just can't hide it!

    I'm so happy for you!!!
  4. Michellesews

    Rant - pals only please

    This just makes me want to Reach out, hug you like crazy and say, you definitely have him figured out. Does he expect to be the beneficiary on your insurance? So sad, most behaviors simply require that you follow the money. I'm CALS to my husband and reading all these posts makes me want to...
  5. Michellesews

    CALS Roll Call Continued

    Hello All...well here it is Friday and I'm 2 days late...I'm always late these days! Took PALS to the Pulmo doc yesterday. I declined a PFT because I thought it would kill him. I don't need to know numbers, I know he's dying. His O2 sat on the trilogy was 88. They took it twice, same...
  6. Michellesews

    Goodbye to all

    God bless you, Neil. I'm praying for your peace and also your daughter and family. We will meet one day..Godspeed!
  7. Michellesews

    Peeling skin inside the mouth

    I found out the skin sloughing in my PALS mouth is from the Trilogy. The humidifier does not last all night and goes dry. When I get up in the morning the first thing I do is refill it. Buckhorn: we were given the Trilogy after our first visit with the pulmonologist. His numbers weren't...
  8. Michellesews

    Peeling skin inside the mouth

    My PALS has skin peeling off inside his mouth. It looks very red. He does use a Trilogy with mask 95% of the time. Any thoughts or remedys?
  9. Michellesews

    CALS Roll Call Continued

    Heels everyone...here it is Thursday and I missed call again. I don't know why I don't seem to make it. Al has been going down steadily. He can no longer stand at all, both hands useless and he is on his Trilogy 95% of the time. Transferring him from recliner to bed via the Hoyer has become...
  10. Michellesews

    Turned down by Hospice!

    My PALS uses a Trilogy via mask. It is rented through Medicare. The Hospice intake nurse stated that he could not be accepted because Hospice woukd not pay for the Trilogy. Has this happened to anyone else?
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