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  1. Lobster

    Why am I dizzy?

    Yesterday, I slept most of the day, instead of my usual 1 hour nap after lunch. This morning, paid CALS moved me from lying down to sitting up and the room started spinning. I managed to say (mumble) "passing out" and she laid me back down... Three tries, same result.
  2. Lobster


    For the past year, I have had nausea in the morning. Sometimes it is mild, but lately it is getting progressively worse. I have dry heaves every morning. The nausea continues throughout the day but is very bad first thing in the morning. I am hungry all the time because I don't feel like eating...
  3. Lobster

    Researchers confirm prion-like properties in ALS

    Researchers confirm prion-like properties in ALS 2011-09-20 Vancouver, BC - A team of researchers from the University of British Columbia and the Vancouver Coastal Health Research Institute have found a key link between prions and the neurodegenerative disease amyotrophic lateral sclerosis...
  4. Lobster

    MRI research demonstrates ALS attacks multiple parts of the brain

    MRI research demonstrates ALS attacks multiple parts of the brain Public release date: 16-Sep-2011 More than just movement affected by ALS Recently published studies by a researcher in the Faculty of Medicine & Dentistry demonstrate that ALS – known as Lou Gehrig's disease – damages neurons...
  5. Lobster


    It is like being in prison. In solitary. But the amenities are better -- higher thread count, better soap, and the expensive toilet paper and bidet. My friends are getting together today. I cried in front of them last week and I thought, they will never want to see me again. I found out...
  6. Lobster

    Patient letter in NY Times re "possible cause of ALS"

    An excellent letter: September 5, 2011 Another A.L.S. ‘Holy Grail’ (1 Letter) To the Editor: Re “Possible Culprit Is Found for Lou Gehrig’s Disease” (In Theory, Aug. 30): This excellent article on a devastating disease has some troubling observations. Not the least of these is a researcher’s...
  7. Lobster

    To PEG or not to PEG, that is the question:

    To PEG or not to PEG, that is the question: Whether 'tis nobler in the mind to suffer The slings and arrows of outrageous weight loss, Or to take arms against a sea of saliva, And by opposing end the choking? I could go on, but instead I will simplify my query: Who here has decided to forgo...
  8. Lobster

    Breast Cancer Treatment for ALS?

    Saw this at AOL and Huffington Post, not exactly the New England Journal of Medicine... Breast Cancer Treatment for ALS? Posted: 9/2/11 11:36 AM ET ALS (Amyotrohic Lateral Sclerosis) -- also know as Lou Gehrig's disease -- represents one of the most challenging disorders for neurologists...
  9. Lobster

    Should a paralysed person have the right to die?

    My comment: Until it is easy to get all the help one needs to live, the option to die is coercive. I feel pressure to end my life because of the lack of family, social, and societal support. While I would like the right to die on my own terms, until I have the right to live in dignity, any...
  10. Lobster

    Patients Like Me in the news

    Full article here: TR35: Paul Wicks, 30 - Technology Review Excerpt: Each day, thousands of people around the world open an automated e-mail asking, "How do you feel now?" The e-mail's recipients belong to a social network called PatientsLikeMe, and nearly all have been diagnosed with a...