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    canceled. I have a telehealth appt with her tomorrow, but not sure how useful that will be...

    canceled. I have a telehealth appt with her tomorrow, but not sure how useful that will be, since she can’t examine me or run any further tests. I’m sorry things are so slow with your medical system over there, as I know the waiting and wondering part can be agonizing. Hopefully you have the...
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    I’m doing fair. Trying to stay positive, but it’s hard as my atrophy and twitching are...

    I’m doing fair. Trying to stay positive, but it’s hard as my atrophy and twitching are worsening. I agree that the emgs are very fun. I was supposed to see my new neurologist for EMG #6 about a week and a half ago and possibly a muscle biopsy at that time as well, but due to corona, the visit was
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    That’s very common for a neurophysiologist to perform the EMG. I’d agree with you, that if it’s...

    That’s very common for a neurophysiologist to perform the EMG. I’d agree with you, that if it’s been a month and the neuro hasn’t contacted you, imo, that would seem to support a positive outcome for the EMG. I’d think it would be medical negligence if your EMG was concerning and they didn’t say...
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    and down stairs, getting out of a car etc. My strength has undoubtedly changed for the worse...

    and down stairs, getting out of a car etc. My strength has undoubtedly changed for the worse since this all started. IMO, a five year old could likely pass the strength tests at the neuro office.
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    but it’s just continued to worsen since then. I had some minor atrophy at the starts, but it...

    but it’s just continued to worsen since then. I had some minor atrophy at the starts, but it became really progressive about six months in. Despite not being able to rt heel walk, I still test 5/5 strength wise in all muscle when the neuro does manual muscle testing and that 20 months in. I have...
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    Yes. I really thought a few months in that this was going to be nothing and would go away...

    Yes. I really thought a few months in that this was going to be nothing and would go away, especially after my first two EMGs were totally clean and the docs said I was good to go. But, things didn’t get better, only worse. Then EMG 3 was dirty in one muscle, then EMG 4and 5 dirty in several...
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    Hey Psychstudent. How’d your EMG go?

    Hey Psychstudent. How’d your EMG go?
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    Hi Ivonne, how you holding up?

    Hi Ivonne, how you holding up?
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    Not sure. My twitching is wide spread though. Head to toe. I also tested high on the provoked...

    Not sure. My twitching is wide spread though. Head to toe. I also tested high on the provoked urine test for lead as well. Hoping to get another EMG and or muscle biopsy soon and see what that yields. If it doesn’t yield anything closer to an als Dx, then chelating may be in my cards. Have you...
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    The interesting thing related to gadolinium is that I had both injections in my right arm and my...

    The interesting thing related to gadolinium is that I had both injections in my right arm and my atrophy is primarily confined to the right side of my body, head to toe. Coincidence?
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